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  1. Dolphin

    Criticisms of DecodeME in the media - and responses to the criticisms

    I recall some research showing previous depression appearing to precede ME/CFS. The problem was it often takes years to get diagnosed. So in the years before diagnosis, patients may appear depressed either due to the physical symptoms of ME/CFS having some similarity to depression or because...
  2. Dolphin

    DecodeME in the media

    New press release: "Key genetic differences found in people with ME/CFS" https://www.ed.ac.uk/news/key-genetic-differences-found-in-people-with-mecfs
  3. Dolphin

    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    https://bsky.app/profile/exceedhergrasp1.bsky.social/post/3lvqeccmwg22n ETA: I’ll try embedding a post from X:
  4. Dolphin

    News from the USA, United States of America

    Source: U.S. Senate / Twitter/X / Not Just Fatigue Date: August 1, 2025 URL: Ref: Convert from jpg to txt, https://document.online-convert.com/convert-to-txt Big win in the Senate! After more than a year of advocating for federal research funding, Congress has...
  5. Dolphin

    World ME Alliance, was previously IAFME: International Alliance for ME

    https://worldmealliance.org/2025/08/new-clinician-resource-guide-published-for-severe-me-day-2025/ New Clinician Resource Guide Published for Severe ME Day 2025 Ahead of this Severe ME Day — August 8th — the World ME Alliance is proud to launch a vital new publication: Supporting People with...
  6. Dolphin

    World ME Alliance Resource: Supporting People with Severe and Very Severe ME/CFS - a Resource Guide for Clinicians

    https://worldmealliance.org/2025/08/new-clinician-resource-guide-published-for-severe-me-day-2025/ New Clinician Resource Guide Published for Severe ME Day 2025 Ahead of this Severe ME Day — August 8th — the World ME Alliance is proud to launch a vital new publication: Supporting People with...
  7. Dolphin

    Extraintestinal symptoms in irritable bowel syndrome are associated with stress reactivity & the gut microbiome in a sex-dependent manner, 2025,Jacobs

    Jacobs JP, Labus JS, Dong TS, Shin AS, UCLA SCORE Group in IBS and Sex Differences, Mayer EA, Chang L, Extraintestinal symptoms in irritable bowel syndrome are associated with stress reactivity and the gut microbiome in a sex-dependent manner, Clinical Gastroenterology and Hepatology (2025)...
  8. Dolphin

    News from the USA, United States of America

    U.S. Court of Appeals rules on a disability case regarding someone with CFS/FM: https://media.ca7.uscourts.gov/cgi-bin/OpinionsWeb/processWebInputExternal.pl?Submit=Display&Path=Y2025/D08-01/C:24-1718:J:Maldonado:aut:T:fnOp:N:3405270:S:0
  9. Dolphin

    USA: News from the Bateman Horne Center

    This is on August 19.
  10. Dolphin

    The Use of Heart Rate Variability-Biofeedback (HRV-BF) as an Adjunctive Intervention in Chronic Fatigue Syndrome (CSF/ME) in Long COVID, 2025, Cossu

    https://www.mdpi.com/2077-0383/14/15/5363 first_page settings Order Article Reprints Open AccessArticle The Use of Heart Rate Variability-Biofeedback (HRV-BF) as an Adjunctive Intervention in Chronic Fatigue Syndrome (CSF/ME) in Long COVID: Results of a Phase II Controlled Feasibility Trial by...
  11. Dolphin

    Review Causes of symptoms and symptom persistence in long COVID and myalgic encephalomyelitis/chronic fatigue syndrome, 2025, Komaroff et al.

    https://www.eurekalert.org/news-releases/1093423 News Release 1-Aug-2025 Why do symptoms linger in some people after an infection? A conversation on post-acute infection syndromes Peer-Reviewed Publication Massachusetts General Hospital In recent years, doctors and scientists are increasingly...
  12. Dolphin

    Review Objective measurement of cancer-related fatigue, 2025, Beeler

    https://link.springer.com/article/10.1007/s00520-025-09764-4 Objective measurement of cancer-related fatigue Review Published: 24 July 2025 Volume 33, article number 716, (2025) Cite this article D M Beeler, CM O’Higgins, B Brady, D Walsh & RB Reilly Abstract Purpose This narrative...
  13. Dolphin

    Open [Remote, USA and Canada] Hydrogen Water Dosing Study for ME/CFS

    Do we know they are funding it? They may just be highlighting recruitment. Solve ME have been highlighting recruitment for it recently.
  14. Dolphin

    Adaptive pacing : Dr Meg Arroll, psychologist and "international best-selling author"

    She did her PhD on ME/CFS. That was her diagnosis at the time, not sure whether she now views that as a misdiagnosis?
  15. Dolphin

    Trial Report Viral spike antigen clearance and augmented recovery in children with post-COVID [MIS-C] treated with larazotide, 2025, Yonker et al

    https://www.eurekalert.org/news-releases/1092914 News Release 30-Jul-2025 Clinical trial finds safe, effective treatment for children with severe post-Covid syndrome Peer-Reviewed Publication Mass General Brigham In a small trial, Mass General Brigham researchers found a drug designed to...
  16. Dolphin

    News from Canada

    B.C. government plans to cut payments for long-COVID clinics, leaving patients in the lurch https://vancouversun.com/news/bc-government-plans-to-cut-payments-for-long-covid-clinics
  17. Dolphin

    Social Determinants of Health and Risk for Long COVID in the U.S. RECOVER-Adult Cohort, 2025, Feldman et al.

    https://www.eurekalert.org/news-releases/1092057 News Release 28-Jul-2025 Economically disadvantaged patients at greater risk for long COVID Peer-Reviewed Publication American College of Physicians Embargoed for release until 5:00 p.m. ET on Monday 28 July 2025 Follow @Annalsofim on X...
  18. Dolphin

    Social Determinants of Health and Risk for Long COVID in the U.S. RECOVER-Adult Cohort, 2025, Feldman et al.

    https://www.eurekalert.org/news-releases/1092743 News Release 28-Jul-2025 Risk of long COVID increases with social and economic hardship Mass General Brigham investigators led a nationwide study that found that financial hardship, food insecurity, lack of healthcare access, and other social...
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