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    PEM-like descriptions and accounts in non-ME illnesses

    There must be some people who have other conditions and also have whatever it is we currently refer to as ME/CFS. There have to be, unless other conditions are protective against ME/CFS and vice versa.
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    United Kingdom: ME Association governance issues

    aha: https://www.barnesandnoble.com/w/sick-notes-dr-tony-copperfield/1123735612
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    United Kingdom: ME Association governance issues

    Possibly a number of people have written the column under the pseudonym over the years.
  4. E

    Articles by Elke Hausmann, GP

    One might say it's also a cautionary tale of how GPs' training may not equip them with the critical thinking skills to distinguish scientific evidence from persuasive storytelling.
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    Articles by Elke Hausmann, GP

    https://bjgplife.com/revisiting-my-book-review-from-18-months-ago-a-cautionary-tale/ Elke Hausmann looks back on her 2023 book review of 'The Way Out – The Revolutionary Scientifically Proven Approach to Heal Chronic Pain by Alan Gordon' in which she suggested that it would be helpful for...
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    Long COVID vs. functional neurological disorder: Punching down, 2025, Dawson

    It's only "raising a clash" between the two conditions if you start with the belief that the two are the same or essentially similar.
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    Which interventions are acceptable to patients for managing fatigue in long-term conditions?: A qualitative evidence synthesis,2025,Booth/Deary/Burton

    The 'Thematic Analysis' offers a series of quotes from patients describing how they had blamed themselves for being lazy or weak when they were fatigued, but once they learned about fatigue as a consequence of stroke or kidney disease, etc., they coped better with it. The researchers'...
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    UK House of Lords/ House of Commons - relevant people and questions

    In the next 12 months then? Tick tock! It would take longer than that to identify all the people with complex needs, let alone write each them of a 'personalised care plan', even if they started now.
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    Interrogating pulmonary diffusing capacity in long COVID: insights from DLCO and DLNO testing, 2025, Parks et al.

    Sorry, this isn't a direct reply to your question but might be relevant re 'normal values'. The authors say: SGRQ is the St. George’s respiratory questionnaire, which evaluates 'symptoms related to pulmonary changes including dyspnea, coughing, and wheezing'.
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    Rehabilitation providers’ experiences with long COVID care in Canada: a qualitative study, 2025, Leighton

    It's always folding laundry in these examples, isn't it? So you'd get the impression patients are just too dim to realise they don't have to fold a whole load of laundry in one go. It would help these therapists if they tried substituting some other activities, things that are actually...
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    Rosetta Stone Study: £1.1m awarded to investigate links between ME/CFS and Long Covid

    I'm glad to see this, and looking forward to knowing what definition of 'Long Covid' they're using.
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    The ME Association Clinical Assessment Toolkit (ME-CAT) and app (autonom-e)

    Perfect example of how far detached from reality their whole approach is.
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    Monitoring app - Visible - a platform "designed for any invisible illness that benefits from resting and pacing - including ME/CFS & Long Covid."

    It's not clear at all. It isn't stated on the page where the list of trials is advertised. You have to click an 'i' in a circle and go through to a different page that gives the information - and how many people will want to do that or know that they need to? This is the same issue I had with...
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    Monitoring app - Visible - a platform "designed for any invisible illness that benefits from resting and pacing - including ME/CFS & Long Covid."

    Then they should make it clear in the part of the app which highlights and promotes these trials that "our small team" aren't endorsing these trials and that they may involve risk. So sick of people using automated technology as an excuse to avoid responsibility.
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    Recovery from chronic fatigue syndrome: a reflexive thematic analysis of experiences of people before, during and after treatment, 2025, Chalder+

    "You see, it's not that CBT isn't helpful, it's just that the poor dears don't realise they've been helped."
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    Review Evaluating Pacing Therapy versus GET for improving fatigue, pain, and quality of life in adults with ME/CFS, 2025, Cooper

    Just noticing this is now dated October 2025, don't know if there have been any significant amendments. https://www.sciencedirect.com/science/article/pii/S1360859225002025
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