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They offered an extensive, online questionnaire on PEM to ca. 1500 patients. Obviously, the ME/CFS diagnosis was not confirmed by a clinician of the research team, patients simpled reported to have been diagnosed with ME or CFS. The paper is open-access: https://www.mdpi.com/2075-4418/9/1/26 1)...

New study on PEM by the research team of Leonard Jason. I'm sure many on this forum will have filled in the online questionnaire:

I don't agree with some of the criticism. The diagnostic criteria seem alright: patients had to meet the Fukuda criteria and Canadian criteria. Almost all patients were unable to work or study full-time and a majority was on 100% sick leave. So they were more than mildly affected. The lack of...

This is an argument that should be repeated more often IMO:

I see that the author, Jacob Stegenga, has also written a book that looks interesting: Medical Nihilism. From the blurb:

I think there are issues that go beyond the treatments a theory proposes. Suppose that doctors believed in the psychosocial theory of ME/CFS, namely that the disability of ME/CFS patients endures because they have false illness beliefs and unhelpful behaviors. And suppose that those doctors...

Wonderful! Thanks for raising the issue @Diane O'Leary. This is a great quote:

Might be that I'm putting the bar too low because this is a Crawley study. But I do expect that we will be getting information about CFS children no longer able to follow school: how they are managed, what their prognosis is and how often pediatricians see this kind of patients. I would still...

Don't see much wrong with this study. The incidence estimate will probably be inaccurate because some severe patients might not see a pediatrician. But it could give a lower end estimate of severe ME/CFS, according to their definition. The study might give us information on how severe ME is...

I think one gets the best overview of this paper by looking at the tables for double ** which indicates statistical significance (in this case p<0.01). In the adolescent CFS patients, they tested 7 outcomes: seven subscales on questionnaires about perfectionism and beliefs about emotions. Only...

New paper by Ioannidis, which I thought was interesting.

Does anyone on the forum have experience with organizing a millions missing event? I'm sort of wondering what happens during the actual event and how long it lasts. It seems like in most cases speeches are being given and patients and carers share experiences through an amplified sound...

Am I the only one having trouble accessing this paper? Even the Sci Hub link doesn't seem to work for me.

I wrote a brief comment to this letter by S. Brostrøm, the Director of the Danish Health Authority. It is titled: “Patients with functional disorders want a proper diagnosis.” It has been accepted for publication and can be read it for free by using this Share Link...

Great summary Trish! Though I think it's a little soft on Eysenck. I think he didn't just add his name to the research but actively promoted it. And the tobacco money seems to be linked directly to him instead of the research. Marks for example writes: "To his eternal shame, the attempts by...

Yes. I don't think the CDC symptom inventory (Found here: https://www.cdc.gov/me-cfs/pdfs/symptom-inventory-questionnaire-508.pdf) has much to do with ME/CFS as it is currently defined. It asks about all types of symptoms like fever, diarrhea, chills, sleeping problems nausea, sinus or nasal...

Maybe it's a good idea to have a thread where organizers of past millionsmissing events share info and practical tips on how to do it?

If you offer a questionnaire to 69 persons who work at an academic institution, none of them probably has CFS. The term should not have been used in this study. This is basically a study of fatigue and burn-out like symptoms in the workforce. The references for previously claimed similarities...

Couldn't upload the file because it was too large - which is weird cause it's only 34 pages long. But if you go the 'print page' and just annulate the printing process, you can make a PDF of it quite easily. https://www.medscape.org/viewarticle/907632_print