I get hot when I'm in PEM (after exercise years ago). I've never had chills. But I do have low body temperature (95.6) for 2 days after PEM...
Yes the experiences are similar. I usually have to wait a few days to know the differences between flares and actual reactivation of viruses....
Also, it's important to include 'permanently disabled'. Yes, same in Canada.
I witness the shocking transformation of my face and posture when I'm at the hair salon. I'm sitting in front of the mirror from beginning to...
Is there a box where you can describe the nature of your disability? Can you attach a written letter describing it?
I believe Dr. Chia found enterovirus in an autopsied brain donated from an ME patient. It was never detected in the patients blood or stomach...
Richie Shoemaker's trial with low dose erythropoietin to lower CDa: https://www.survivingmold.com/docs/Treatment_of_elevated_C4a.PDF
I was going to write something until I realized that I misread "Mean symptom scores were significantly increased after exercise through the use of...
@Skycloud I think his behaviour makes it quite clear that he has no interest in engaging with anyone?
I had my first Pfizer end of June and second jab end of July. I have been experiencing a vestibular virus for almost 2 years and been quite...
Abstract Fast-replicating neurotropic herpesviruses exemplified by herpes simplex virus-1 (HSV-1) naturally infect the central nervous system...
Agree with you about supporting someone who supports you. I was thinking of my narc sister who went on and on about her flu after we hadn't...
Same with Amygdala retraining. Just start calling your spider Amy and you'll be ok.
I think I had neurally mediated hypotension earlier on and it resolved on its own.
I don't know if I experienced orthostatic impairment during my earlier years of PEM. I certainly didn't have any issues being upright or...
I was a marathon runner and continued to run after I had ME. I became ill in 1991, and PEM wasn't even a term back then, delayed PEM was...
My symptoms did not improve after constant viral reactivations, it actually brought me down further and I started experiencing orthostatic...
Hey Phil, Nice to see you here and sharing your recovery, and congrats on your improvement. Did you experience delayed PEM? What I would...
Activities helps to maintain some level of 'fitness', whereas exercise increases our level of fitness? They are not interchangeable.
I would love it if Phil joined in our thread here. I also improved earlier on in the illness and was able to do more, but I hit a wall 18...
Separate names with a comma.
