@Barry Do you have the link to that exchange between MS and Carol Monaghan? I'd like to see the rest of the thread but your picture is just an...
I think that people submit their stories to the people who run the group via private message, and then the stories are published with initials and...
Chest pain can also be caused by severely low iron.
Is there any way to make sure that future research includes severely affected housebound and bedbound patients in any research cohort?
Well, sedating someone usually does alter brain function - people are sleepy, can't talk very fluently, probably have memory problems etc. I've...
"following an interview under sedation" WTF! Is that common? Does anyone actually believe what is said by patients under sedation? In what way is...
Is it "normal" for young kids to spend time being so introspective? I suspect that the high rates of depression found amongst the young may be one...
Two more links : https://www.mirror.co.uk/news/uk-news/young-woman-bed-bound-three-12559425 Article continues at link above......
You can see the report from the link Andy posted. [MEDIA] I can read it even though I don't have a Facebook account. A box pops up asking you...
I wonder how many people with IBD are fobbed off with a diagnosis of IBS for years. I suspect a fairly large proportion of the people frequenting...
Did everyone go home at 5pm? Because the BBC finally posted an article on #MillionsMissing (Correction : ME or CFS ) at around that time......
Anyone else noticed that reporting on the #MillionsMissing day is noticeable by its absence on the BBC news pages today?...
Published yesterday, so probably in the wrong place : [MEDIA]
Low thyroid hormone levels, particularly low T3, can prevent dreaming, or will dramatically increase the chance that any dreams are actually...
I took Pregabalin for a few (perhaps three?) months a few years ago, for pain that was declared to be neuropathic. I'm not even slightly convinced...
Snap! That describes me! My best time of day, by far, is usually evening. I know that I've had very high cortisol first thing in the morning in...
Anyone using German pharmacies from outside Germany itself are discovering that they no longer deal with anyone but Germans when it comes to...
I notice that the "leading ME researchers and clinicians" are nameless. This is the first time I've seen this from the BBC in this context (as far...
Yes, that is why I thought it was worth posting. But it still shocks me to the core.
Doh! I missed that completely! Thanks for the answer! :banghead: :facepalm: :rofl:
Separate names with a comma.
