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  1. Amw66
    Post

    BMJ Archives of Diseases in Childhood: ''Editor’s note on correction to Crawley et al. (2018)'', 2019, Nick Brown. (SMILE LP Trial)

    The heart of the matter [MEDIA]
    Post by: Amw66, Jul 12, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  2. Amw66
    Post

    UK Teach Primary Magazine: 'A heavy weight to carry' by Claire Tripp, 2019

    Thanks @chicaguapa :)
    Post by: Amw66, Jul 12, 2019 in forum: General ME/CFS news
  3. Amw66
    Post

    Mad Cow Disease: The Great British Beef Scandal

    The problem with pesticides is that the acceptable levels are based on individual pesticides. From sowing to crop there are a multitude of...
    Post by: Amw66, Jul 12, 2019 in forum: Other health news and research
  4. Amw66
    Post

    Weighted blankets

    Bamboo is good for moisture control. My daughter's s memory foam neck pillow has a bamboo casing which seems to help. Wool is also great at "...
    Post by: Amw66, Jul 12, 2019 in forum: Home adaptations, mobility and personal care
  5. Amw66
    Post

    Study finds psychiatric diagnosis to be ‘scientifically meaningless’

    Very much so. My daughter had cbt via CAHMS for anxiety. The second session was a fishing trip for early childhood trauma which she found very...
    Post by: Amw66, Jul 12, 2019 in forum: Other health news and research
  6. Amw66
    Post

    Post-Exertional Malaise Is Associated with Hypermetabolism, Hypoacetylation and Purine Metabolism Deregulation in ME/CFS Cases, 2019, McGregor et al

    There were a few threads re BCAAs at the other place. Many used them for "PEM busting ability"
    Post by: Amw66, Jul 12, 2019 in forum: ME/CFS research
  7. Amw66
    Post

    BMJ Archives of Diseases in Childhood: ''Editor’s note on correction to Crawley et al. (2018)'', 2019, Nick Brown. (SMILE LP Trial)

    For a population group who are supposed to benefit from higher levels of protection, when it comes to paediatrics, careers seem to trump the...
    Post by: Amw66, Jul 12, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  8. Amw66
    Post

    BMJ Archives of Diseases in Childhood: ''Editor’s note on correction to Crawley et al. (2018)'', 2019, Nick Brown. (SMILE LP Trial)

    So this stands for NICE' s consideration. Wonderful....
    Post by: Amw66, Jul 11, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  9. Amw66
    Post

    Weighted blankets

    Knitted cotton blanket, some are patterned so will have weight while still having lighter areas ( maybe not so warm?)
    Post by: Amw66, Jul 11, 2019 in forum: Home adaptations, mobility and personal care
  10. Amw66
    Post

    JAMA -"Advances in understanding the Pathophysiology of Chronic Fatigue Syndrome" by Anthony Komaroff

    Don't t despair. Although I feel that there are many routes to the same end state, there will be common pathways which may help define subsets....
    Post by: Amw66, Jul 9, 2019 in forum: General ME/CFS news
  11. Amw66
    Post

    ME Epidemiology - prevalence and peak ages of onset

    Perhaps ME peeps are outliers
    Post by: Amw66, Jul 9, 2019 in forum: Epidemiology (incidence, prevalence, prognosis)
  12. Amw66
    Post

    ME Epidemiology - prevalence and peak ages of onset

    I wish I had a clue. Flinging a few things in perhaps testosterone drops off a cliff for some rather than starts gradually. That the lack of...
    Post by: Amw66, Jul 9, 2019 in forum: Epidemiology (incidence, prevalence, prognosis)
  13. Amw66
    Post

    ME Epidemiology - prevalence and peak ages of onset

    Testosterone starts dropping in 30s. Same biochemical impacts hold re synthesis pathways, cofactors and deficiencies. Perhaps the low...
    Post by: Amw66, Jul 9, 2019 in forum: Epidemiology (incidence, prevalence, prognosis)
  14. Amw66
    Post

    MicroRNAs as biomarkers of pain intensity in patients with chronic fatigue syndrome. Al-Rawaf (2019)

    I would agree I would agree re pain tolerance. My daughter finds it difficult to compare pain / " meh face" scores on a diary app she has as...
    Post by: Amw66, Jul 9, 2019 in forum: ME/CFS research
  15. Amw66
    Post

    ME Epidemiology - prevalence and peak ages of onset

    I know I do not have a science back ground but HORMONES!!! Puberty and pregnancy have huge hormonal shifts which also require co factors, pathways...
    Post by: Amw66, Jul 9, 2019 in forum: Epidemiology (incidence, prevalence, prognosis)
  16. Amw66
    Post

    Want to learn about neurology

    When I jumped in at the deep end for uni a few years ago, I tackled the module I would have felt least confident with ( electrical systems) on...
    Post by: Amw66, Jul 7, 2019 in forum: Other health news and research
  17. Amw66
    Post

    Introducing #MEAction’s 2019 ME Research Summary

    I think my point is more re research in general. Chris Ponting only got a hit on a specific non hereditary gene as he looked at females only -...
    Post by: Amw66, Jul 7, 2019 in forum: Advocacy Projects and Campaigns
  18. Amw66
    Post

    Blood volume and red blood cell volume in ME/CFS

    Given the different manifestations between Male and female from recent metabolonic/ protoeiomic studies, is there a way to break down research...
    Post by: Amw66, Jul 6, 2019 in forum: ME/CFS research
  19. Amw66
    Post

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    Is this simply to expand a fan base; we seem to be moving forward on basis of a personality cult.
    Post by: Amw66, Jul 6, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  20. Amw66
    Post

    Physios for ME

    Sadly our referral was for GET. Physio was nice but simply did not have a clue. Completely unrealistic prognosis and conflation with chronic...
    Post by: Amw66, Jul 5, 2019 in forum: General ME/CFS news
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