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  1. Amw66
    Post

    NZ - Complex Chronic Illness Support - Towards Wellness course

    Again the takeaway issue is the conflation of chronic fatigue ( in all its manifestations) with ME. If a clear diagnosis cannot be made, then...
    Post by: Amw66, Nov 8, 2018 in forum: Other treatments
  2. Amw66
    Post

    UK - Discussion of how many patients use NHS ME/CFS clinics

    Is this solely related to England ( and Wales) or is it meant to be UK based?
    Post by: Amw66, Nov 8, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  3. Amw66
    Post

    Livestream Tuller and Hughes 2 Oct 2018 Newry : The PACE Trial: 'One Of The Greatest Scandals

    Thank you.
    Post by: Amw66, Nov 8, 2018 in forum: Advocacy Action Alerts
  4. Amw66
    Post

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Hmm. There is usually significant missing data but little effort to explore the reasons for this. I suspect researchers understand why this may...
    Post by: Amw66, Nov 7, 2018 in forum: 2020 UK NICE ME/CFS Guideline
  5. Amw66
    Post

    David Tuller: Trial By Error: Yet Another Letter About the Lightning Process Study

    Much appreciated @dave30th . This is the kind of paper which will no doubt be in the evidence for NICE ( together with FITNET and MAGENTA).
    Post by: Amw66, Nov 7, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  6. Amw66
    Post

    UK - Discussion of how many patients use NHS ME/CFS clinics

    As far as I know, Scotland has 3 locations for clinic type " support" 1 clinic in Western Isles (perhaps related to organophosphates?)...
    Post by: Amw66, Nov 7, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  7. Amw66
    Post

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Great news thank you
    Post by: Amw66, Nov 7, 2018 in forum: 2020 UK NICE ME/CFS Guideline
  8. Amw66
    Post

    Livestream Tuller and Hughes 2 Oct 2018 Newry : The PACE Trial: 'One Of The Greatest Scandals

    @Brian Hughes . A critique of FITNET and MAGENTA in due course would be appreciated, as these will inform NICE deliberations and seem to be full...
    Post by: Amw66, Nov 5, 2018 in forum: Advocacy Action Alerts
  9. Amw66
    Post

    Action for ME: The PACE trial and behavioural treatments for M.E. [position statement]

    @Emsho note scottish guidance.perhaps something for MEAction. There is an even worse one for kids from psychologists for NHS Scotland.
    Post by: Amw66, Nov 4, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  10. Amw66
    Post

    Frontiers in Pediatrics: Blood volume status in ME/CFS correlates with the presence or absence of orthostatic symptoms (2018) Van Campen et al

    Tagging @mariovitali
    Post by: Amw66, Nov 2, 2018 in forum: ME/CFS research
  11. Amw66
    Post

    Cochrane ME/CFS GET review temporarily withdrawn

    The question is by whom ?
    Post by: Amw66, Nov 2, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  12. Amw66
    Post

    The Clinician’s Vaccine Safety Resource Guide 'Do Vaccines Cause Fibromyalgia or Chronic Fatigue Syndrome (CFS)?'

    Is it the vaccine itself or the adjuvent that is implicated?
    Post by: Amw66, Nov 2, 2018 in forum: ME/CFS research news
  13. Amw66
    Post

    Blood test ranges and low blood volume

    Low cortisol common - also tie in with endocrine symptoms.... Hopefully the current research into hormones may shine a light on this area
    Post by: Amw66, Nov 1, 2018 in forum: General and other signs and symptoms
  14. Amw66
    Post

    Blood test ranges and low blood volume

    Thanks. It would be interesting to know if this has been looked at in ME , particularly given @alex3619 ' s comments re absolute counts. Does...
    Post by: Amw66, Oct 31, 2018 in forum: General and other signs and symptoms
  15. Amw66
    Post

    A list of people who applied for the NICE ME/CFS guideline group but who were not accepted

    This succinctly sums things up.
    Post by: Amw66, Oct 31, 2018 in forum: General ME/CFS news
  16. Amw66
    Post

    Blood test ranges and low blood volume

    Thank you @Jonathan Edwards . I had mistakenly thought that there would have been some effect ( to have same range for a reduced volume did not...
    Post by: Amw66, Oct 31, 2018 in forum: General and other signs and symptoms
  17. Amw66
    Post

    Blood test ranges and low blood volume

    This is an aside, but interesting. I am doing a part time course, so I sit in on the full time classes for the modules that I have chosen; there...
    Post by: Amw66, Oct 31, 2018 in forum: General and other signs and symptoms
  18. Amw66
    Post

    Action for ME GP webinars

    Bump - no response still Slide with GET recommendation still in place on dropbox link
    Post by: Amw66, Oct 30, 2018 in forum: General ME/CFS news
  19. Amw66
    Post

    Illness beliefs of adolescents with CFS and their parents: the perceived causes of illness and beliefs about recovery, 2018,Loades et al (inc Chalder)

    bump - still to have a response to this
    Post by: Amw66, Oct 30, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  20. Amw66
    Post

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Given that differences in opinion and interpretation have been fractious in the past and a coordinated unified response is required from all ME...
    Post by: Amw66, Oct 29, 2018 in forum: 2020 UK NICE ME/CFS Guideline
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