Hi @Dania Ala, welcome to the forum. Could you tell us who your supervisors are, please, and how you and/or they came to be interested in this...
I used the video in advocacy today. Thanks to David and George
31 people with Long covid, with these people not necessarily primarily having fatigue - some primarily had breathlessness or chest pain. So, quite...
I would have thought that a trial that is run as part of an existing clinical practice wouldn't have to cost nearly so much. If Dr Tam or someone...
Not everyone can take 0.5mg of Abilify to see if it works. My doctor would laugh at me if I asked. Even those who can find some online may not be...
I do think that any treatment that a doctor offers should either be backed by good quality trial evidence or the treatment should be offered as...
It's interesting and yet another example of doctors ignoring what their patients were telling them, resulting in poor clinical outcomes. I didn't...
I'm always interested in how other cultures have described and categorised post-infection syndromes. It's actually not that far away from ME/CFS...
The productivity issues of Long Covid are noted A perspective on CFS treatment approaches in China Re the Chalder Fatigue Questionnaire and...
Neurology conference in Ireland
Nice work @bobbler Session: Moving NICEly - provided by Jess Sands & Julia Sands IPSE Adventure therapy Jessica Bavinton/Sands is as pro-GET...
Somatic symptom distress is not related to cardioceptive accuracy 2024 Petzke et al
It was laughable that anyone even considered that the two things were related. And yet there are papers with threads here that earnestly...
The thread on the EMEA 2021 survey - now published - is here: https://www.s4me.info/threads/2021-pan-europe-me-patient-survey-emea.22819/ Some...
Great initiative to do the survey; great interview, big thanks to all involved. A couple of comments I had on what was said in the interview....
:( Very best wishes Joan. @PhysiosforME - will any of you be attending?
“Delivering NICEly ME/CFS” Even the title of the conference is patronising, with a cutesy attitude to things and a lack of commitment to the...
I'm not sure that people with ME/CFS all pee frequently all the time and typically with low urine solute concentrations, which is what I would...
Low Vasopressin in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2024, Huhmar/Bragée/Polo Replication of the low vasopressin finding;...
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