I was pointing to PROMs being inappropriate for clinical trials rather than for everything. Asking patients to report is likely to be useful in...
We have had threads going back over five years discussing optimal outcome measures for trials. The problem with the NICE statement is that it...
Yes, it is unclear whether it is the source or the journalism but the quotes are pretty fluffy.
I got my daughter to switch on my Samsung Health App last night to measure my activity. It showed 2,000 steps today because I was feeling...
I just saw that in the Grauniad. Interesting that Fluge and Mella got their first for ME. Although I suspect this is an offshoot of the work on...
I agree, @Michelle, I find it hard to see that they do not at least give a rough idea of major change in a more objective way than asking...
I am all in favour of seeing people regularly long term. And that must surely translate into providing help through experience. But I just unclear...
Hi @sarahtyson, I am afraid that you explanation of the use of 'gold standards' makes me heart sink a little further. Yes, I spent my career...
The PACE authors had the advantage of all being excellent second hand car salespersons. I am not sure that this team is going to get very far...
I am unclear what the purpose is here. If the idea is to monitor how PWME are getting on I suspect the best way to do that is what I always did...
As far as I am aware this has nothing to do with the Javid initiative which involves working groups of which I am a member. I am doubtful that...
I think Charles should be a bit more rigorous. Of course ME can coexist with anything but the evidence for it being specifically associated with...
My understanding of the evidence so far is that there is no inflammation. The only study that looked as if it might show something new was the...
I have no idea but it would not be surprising if many were waiting for treatment for other things, with waiting lists lengthening astronomically....
I have not read the paper but the data seem to me to be presented in a my too predigested form. Antibodies that matter can be presented in a...
I forget the data on this but my memory is that Scheibenbogen looked at muscarinic receptor antibodies and did not find anything comparable. The...
It may be a presentation for a meeting so there may not be a full paper in existence or even planned at this point.
Fibromyalgia is usually used as a term for widespread pain. I have not seen a definition linked to muscle pain despite the 'myalgia' part. The...
Well, now that the Sackler Empire is busted these people might be resting more themselves - but not necessarily enjoying it.
I think most data of this sort coming from an online patient trawl will be affected by various biases and problematic interpretations. But as long...
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