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  1. Amw66
    Post

    Open letter to the Trustees and Staff of Action for ME about the 'Toolkit for professionals'

    I write this as a relative newcomer, a carer and concerned parent, who currently exists in a parallel universe. I have been part of the AfME...
    Post by: Amw66, Oct 18, 2019 in forum: Open Letters and Replies
  2. Amw66
    Post

    The PACE trial video series by A Broken Battery

    Fitnet
    Post by: Amw66, Oct 18, 2019 in forum: Advocacy Projects and Campaigns
  3. Amw66
    Post

    Personality and social attitudes in Chronic Fatigue Syndrome (1999) Wood and Wessely.

    Does Wood being listed as the first author indicate Wessley' s role as junior or senior? The outcome may be relative to that. Eisenberg and...
    Post by: Amw66, Oct 18, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  4. Amw66
    Post

    Open Trial of Vitamin B12 Nasal Drops in Adults With [ME/CFS]: Comparison of Responders and Non-Responders, 2019, van Campen et al

    was it a simple B12 that was tested , or active B12? You can have loads of B12 swilling around but be incapable of using it Did any of the...
    Post by: Amw66, Oct 17, 2019 in forum: ME/CFS research
  5. Amw66
    Post

    Action for M.E. 2019 AGM and conference 15th October 2019

    Yes - this continues to be a huge issue. There is no understanding that it (GET) simply does not work, and has been shown not to work as PACE...
    Post by: Amw66, Oct 15, 2019 in forum: General ME/CFS news
  6. Amw66
    Post

    Action for M.E. 2019 AGM and conference 15th October 2019

    Children's section is probably former AYME staff
    Post by: Amw66, Oct 14, 2019 in forum: General ME/CFS news
  7. Amw66
    Post

    Action for M.E. 2019 AGM and conference 15th October 2019

    Does anyone know the content of the physio and OT briefings? Perhaps @PhysiosforME are familiar. Given the GP info , I am a bit concerned re these
    Post by: Amw66, Oct 14, 2019 in forum: General ME/CFS news
  8. Amw66
    Post

    Food tastes too sweet?

    Gut dysbiosis? https://www.nature.com/articles/s41598-019-40374-3
    Post by: Amw66, Oct 13, 2019 in forum: General and other signs and symptoms
  9. Amw66
    Post

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome', Larun et al. - New version October 2019 and new date December 2024

    This
    Post by: Amw66, Oct 11, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  10. Amw66
    Post

    The Hans Eysenck affair: Time to correct the scientific record (2019) David F Marks

    That depends on your world view and how useful the paradigm is for your own advancement .....
    Post by: Amw66, Oct 11, 2019 in forum: Other psychosomatic news and research
  11. Amw66
    Post

    NICE Guideline review: Call for evidence on myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome, deadline 16th Oct 2019

    Thanks @MEMarge
    Post by: Amw66, Oct 10, 2019 in forum: 2020 UK NICE ME/CFS Guideline
  12. Amw66
    Post

    NICE Guideline review: Call for evidence on myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome, deadline 16th Oct 2019

    The 2 year recovery period is also a misnomer and causes issues - Rowe et al and International paediatric primer suggest recovery over 4-6 years...
    Post by: Amw66, Oct 10, 2019 in forum: 2020 UK NICE ME/CFS Guideline
  13. Amw66
    Post

    NICE Guideline review: Call for evidence on myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome, deadline 16th Oct 2019

    I'm assuming that it's not a " temporarily closed" given the remaining timeframe?
    Post by: Amw66, Oct 10, 2019 in forum: 2020 UK NICE ME/CFS Guideline
  14. Amw66
    Post

    "Positive Health Statement" - Job Centre Plus

    No long term recovery in FITNET, same as SMC longterm . No doubt, as here, PVFS cohort who recover within 2 years. My son had PVFS and was...
    Post by: Amw66, Oct 9, 2019 in forum: Work, Finances and Disability Insurance
  15. Amw66
    Post

    Starving Cancer By Cutting Off Its Favorite Foods, Glucose And Glutamine

    [MEDIA]
    Post by: Amw66, Oct 8, 2019 in forum: Other health news and research
  16. Amw66
    Post

    Starving Cancer By Cutting Off Its Favorite Foods, Glucose And Glutamine

    From 2010 https://nutritionandmetabolism.biomedcentral.com/articles/10.1186/1743-7075-7-7
    Post by: Amw66, Oct 8, 2019 in forum: Other health news and research
  17. Amw66
    Post

    Action for ME GP webinars

    Bump - still no change @phil_in_bristol , can you advise if anything is happening with this? ETA tagged Phil
    Post by: Amw66, Oct 8, 2019 in forum: General ME/CFS news
  18. Amw66
    Post

    Resting-state functional connectivity, cognition, and fatigue in response to cognitive exertion: a novel study in adolescents with CFS (2019) Josev

    Sleep hygiene was a disaster - it panned out as less overall sleep and worry. Medical staff cannot understand that it will not work for everyone....
    Post by: Amw66, Oct 7, 2019 in forum: ME/CFS research
  19. Amw66
    Post

    World ME Alliance, was previously IAFME: International Alliance for ME

    Now Heumber Perry and artistic career taking off https://artplace.co/artist-works.php?artistId=336411&artist=Gilbert%20BADAF Perhaps a change in...
    Post by: Amw66, Oct 7, 2019 in forum: News from organisations
  20. Amw66
    Post

    World ME Alliance, was previously IAFME: International Alliance for ME

    Was it a fixed term appointment / is funding her salary dependent on multiple inputs ?
    Post by: Amw66, Oct 7, 2019 in forum: News from organisations
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