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  1. NelliePledge
    Post

    Anti-convulsants - Pregabalin and Gabapentin

    You can actually get 25mg pregabalin tablets I know this because I couldn’t tolerate 75mg and asked for the lowest dose instead. (In the end I...
    Post by: NelliePledge, Feb 6, 2023 in forum: Drug and supplement treatments
  2. NelliePledge
    Post

    Survey: "TREAT ME" (ME/CFS & Long Covid Treatment Survey), by 'LongCovidPharmD'

    I only did the first few questions about ME/covid. Not the clearest & I couldn’t face trying to understand how to respond to multiple questions...
    Post by: NelliePledge, Feb 6, 2023 in forum: Drug and supplement treatments
  3. NelliePledge
    Post

    The Rest Room: What actually is Post-Exertional Malaise? with Todd Davenport

    Or maybe not separate just immediate and delayed effects of the same process
    Post by: NelliePledge, Feb 5, 2023 in forum: Post-Exertional malaise and fatigue
  4. NelliePledge
    Post

    Persistent physical symptoms after COVID-19 infection and the risk of Somatic Symptom Disorder 2023 Horn et al

    Lille psychosomatic proponents need to learn from their colleagues...
    Post by: NelliePledge, Feb 5, 2023 in forum: Psychosomatic research - ME/CFS and Long Covid
  5. NelliePledge
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    There’s organisations like Healthwatch that have local reach into NHS May be worth considering as well.
    Post by: NelliePledge, Feb 4, 2023 in forum: Recruitment into current ME/CFS research studies
  6. NelliePledge
    Post

    A new paradigm is needed to explain long COVID, Saunders et al 2023

    They are pathetic
    Post by: NelliePledge, Feb 3, 2023 in forum: Long Covid research
  7. NelliePledge
    Post

    Effectiveness and cost-effectiveness of a personalised self-management intervention for living with long COVID: protocol... 2023 Potter et al

    This is the social enterprise organisation they worked with https://diversityandability.com/ the intervention is said to be based on the...
    Post by: NelliePledge, Feb 3, 2023 in forum: Long Covid research
  8. NelliePledge
    Post

    A new paradigm is needed to explain long COVID, Saunders et al 2023

    Good to see the involvement of Professor Tyson. Hopefully she can help get the message out to her profession.
    Post by: NelliePledge, Feb 3, 2023 in forum: Long Covid research
  9. NelliePledge
    Post

    News from Scotland

    Presume this is the statement on behalf of the Scottish Government in closing the debate rather than an SNP policy statement.
    Post by: NelliePledge, Feb 3, 2023 in forum: Regional news
  10. NelliePledge
    Post

    USA: Dr Eric Gordon

    $97….. to be bombarded with marketing
    Post by: NelliePledge, Feb 2, 2023 in forum: USA clinics and doctors
  11. NelliePledge
    Post

    UK: PIP appeals - advice, recommendations?

    All the best @josepdelafuente
    Post by: NelliePledge, Feb 2, 2023 in forum: Work, Finances and Disability Insurance
  12. NelliePledge
    Post

    Cochrane: Physical interventions to interrupt or reduce the spread of respiratory viruses, 2023, Jefferson et al

    I’ve had Covid once and I will still wear a mask if I have to go into crowded space as even though it wasn’t severe I don’t want it again as I...
    Post by: NelliePledge, Feb 2, 2023 in forum: Epidemics (including Covid-19, not Long Covid)
  13. NelliePledge
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    It’s still ongoing so the focus of project should be and no doubt is on what could be done to expand publicity, coming up with ideas and the...
    Post by: NelliePledge, Feb 2, 2023 in forum: Recruitment into current ME/CFS research studies
  14. NelliePledge
    Post

    Rethinking the Standard of Care for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2019, Friedberg, Sunnquist and Nacul

    I think it’s correct that pacing is not just breaking activities down. I call that micro pacing. The first level correctly highlighted by Hutan...
    Post by: NelliePledge, Feb 2, 2023 in forum: ME/CFS research
  15. NelliePledge
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    I don’t know the ins and outs of patient recruitment but I think having 17,000 questionnaire results and so far 9000 DNA samples is not to be...
    Post by: NelliePledge, Feb 1, 2023 in forum: Recruitment into current ME/CFS research studies
  16. NelliePledge
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    It’s a challenge given the current state of things generally in the health service being a potential excuse to be deployed for inactivity by them...
    Post by: NelliePledge, Feb 1, 2023 in forum: Recruitment into current ME/CFS research studies
  17. NelliePledge
    Post

    Preprint: Prediction of Long COVID Based on Severity of Initial COVID-19 Infection: Differences in predictive feature sets... 2023 Socia et al

    Presumably the normal usage of the term functional rather than the euphemism for psychosomatic
    Post by: NelliePledge, Jan 31, 2023 in forum: Long Covid research
  18. NelliePledge
    Post

    ME payback timescales from trauma and recovery

    Hi @Sallycatherineharris.I’m sorry you had a fall, nasty one as you broke your hip, you must have been pretty bruised and shaken up. It’s only 4...
    Post by: NelliePledge, Jan 31, 2023 in forum: General and other signs and symptoms
  19. NelliePledge
    Post

    Stress-Induced Transcriptomic Changes in Females with ME/CFS Reveal Disrupted Immune Signatures, 2023, van Booven et al.

    Yep - if they’d said physical stress it would be clear.
    Post by: NelliePledge, Jan 31, 2023 in forum: ME/CFS research
  20. NelliePledge
    Post

    Beyond the case numbers: Social determinants and contextual factors in patient narratives of recovery from COVID-19 2023 Hitch et al

    Despite it all being old news information to us the fact that it’s badged with Covid 19 is no doubt meaning that people who wouldn’t hear these...
    Post by: NelliePledge, Jan 31, 2023 in forum: Epidemics (including Covid-19, not Long Covid)
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