it'll be lovely wont it. 15 people in a room - 4 with mild ME/CFS, 10 with CF all chatting together & 1 with moderate end of severe ME almost...
yes i actually didn't notice that. I thought i'd clicked on all the links, but actually It also links to an article about 'attitude' on the...
Indeed. It all reminds me of an episode of 'Yes Minister'. Somebody will be appointed to a 'quango' soon :rolleyes: :bored: :banghead:
https://www.gq-magazine.co.uk/article/chronic-fatigue-syndrome-everything-you-need-to-know Not too bad i thought. Of course not perfect but I...
:jawdrop::laugh::laugh::laugh::laugh::rofl::rofl::rofl::rofl::rofl: Oh that did make me laugh @Jonathan Edwards, i needed that tonight, thank...
I'm a bit fed up wth the MEA over their social media policy too - not issuing warnings etc (as in my post above) But, while i think they have a...
Sometimes a hot bath makes me feel significantly better, sometimes much worse. It does help with pain while i'm in there, oh god it feels so good!...
well i got protagonist.... which reading the description, is completely wrong. I've done this, & slightly different but based on the same idea,...
I can clearly see your post @Andy & we're not fb friends. BUT i had to change the fb settings from 'most relevant' - where fb chooses which...
I'm afraid i've not the strength to read the whole thread so apologies if i repeat or go off track. But I couldn't agree more. I think a 'name &...
oooo you wouldnt want to do that <sharp intake of breath> ... that'll be boom & bust n you want to avoid that! for anyone unclear that was...
Exactly. I couldnt walk 500mtrs in 6 days. It took me a while to understand the chart because of that. My SF36 is 10-15 on a good day, & my...
This. And the rest of whats been said by JE in this thread re non blinding & subjective/objective measures. I could rave on about all the...
Eww eeww eww eww EEEWWWW! What on EARTH are the NHS doing getting 'into bed' with these people. I don't know much about the OHC but the Chrysalis...
@kmclellan Hi, I probably shouldn't have posted last night as my comment doesn't make a lot of sense, i was struggling & i probably could have...
Indeed. What we want is something that is actually 'evidence based'. And when we say 'evidence' we mean high quality, scientifically sound...
Ok so i a bit foggy so will just give first impressions... sorry they are 'whats wrong' rather than what's right, because thats just what is...
Very, very good. such a good precis of the issues
Precisely. I do think it's poor for a doctor of his status, standing, influence & power over whether his patients receive such benefits, to not be...
Wow @Dx Revision Watch this whole situation is deeply disturbing & scary & it just stinks that a few patients/advocates - mainly yourself & Mary...
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