Latest episode in their series is Pacing, https://longcovid.physio/long-covid-video-series/pacing
And the opposite to what we see in the DecodeME cohort, where participants rate themselves using the NICE severity scale.
Full title: Assessing health state utilities for people with myalgic encephalomyelitis/chronic fatigue syndrome in Australia using the EQ-5D-5L,...
Nuno Sepulveda on Twitter "Here is our latest preprint (with @fcowester, @mecfsbiobank et al) about the current missing opportunity of estimating...
Abstract The resolution of the COVID-19 pandemic is giving rise to another public health challenge due to the explosion of long COVID (LC) cases....
Abstract Objective: The purpose of this literature review article is to provide a synthesis of recent research focused on the use of 3 techniques...
Bit baffled by this "ME/CFS is a long-term health condition that remains poorly understood, despite affecting an estimated 241,000 children and...
Development and measurement properties of the PEM/PESE activity questionnaire (PAQ) "Measuring Functional Deficits in PEM/PESE: An In-Depth Look...
Well, it wasn't released at 5pm as suggested earlier.
I appreciate that you are just passing the message on, so thank you for that. But "technical issues"? Such as what; the intern that they told to...
"A further finding of this study is the consideration of symptoms of ME/CFS and PEM, also present in long COVID.42 The panel agreed that...
"A/Prof Siobhan O'Dwyer" on Twitter (at 10:37AM today), "So @eleanorhayward @thetimes are reporting that the Interim Delivery Plan for ME/CFS is...
Not blaming you for knowing, just dislike the poor communication by others around something so important.
For those who can't see Twitter posts, Tom Kindlon says "Just learned that publication has been delayed. Now expected sometime between 4 and 5 pm...
Or not, as seems to be the case. Unfortunately I know no more at this point.
They list the publications, so far, from the involved groups here, https://mecfs.rti.org/publications/
Full title: Effectiveness of Internet-Based Cognitive Behavioral Therapy for Patients With Cancer: A Systematic Review and Meta-analysis of...
Another study where it is considered to be useful to gather data on activity, at least in part, through worn devices.
Full title: Digital home monitoring for capturing daily fluctuation of symptoms; a longitudinal repeated measures study: Long Covid...
I don't know the detail of what will be in the delivery plan but I do know that it will be released 2pm UK time today.
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