So a diagnosis of ME/CFS as per the NICE guideline then.
The issue with that idea is that, in today's society, if you don't have a diagnosis then chances of any support drop to near zero. And without a...
"Date of first participant enrolment Anticipated 16/09/2016 Actual 17/10/2016 Date of last participant enrolment Anticipated 23/12/2016 Actual...
Clinical or research?
Or perhaps it gives some indication of the potential natural recovery rate?
Abstract Functional neurological symptom disorder (FNSD) or functional neurological disorder (FND) or conversion disorder, is a syndrome of...
"As a medical term, fatigue seems suspiciously unspecific. Is it just the common tired we all feel, but extra? Is it more like a bad, long day? A...
Thanks for the suggestion Tia, I'll pass it on to the DecodeME team.
Couldn't agree more. It is a sign of the ME/CFS research field 'growing up' when important topics such as pacing start being properly recorded and...
No mention of PEM or PESE at all.
Abstract In 2019, the Coronavirus (SARS-CoV-2) virus was identified, also defined as novel coronavirus or severe acute respiratory syndrome...
Abstract Purpose The number of persons living with post-coronavirus disease 2019 (COVID-19) conditions or long COVID continues to rise...
It is now well established that the blood-clotting protein fibrinogen can polymerise into an anomalous form of fibrin that is amyloid in...
"Post exertional malaise as cardinal sign of ME/CFS was assessed according to Cotler et al. [23]. Diagnosis of ME/CFS was based on Canadian...
Abstract A significant proportion of patients after SARS-CoV-2 infection suffer from long-lasting symptoms. Although many different symptoms are...
ABSTRACT Background and objectives Individuals with Myalgic Encephalomyelitis (ME) have shown altered physiological responses during maximum...
For most of the past century, scientists and the sick lived in largely separate worlds. Knowledge production was left to a narrow circle of...
From a quick scan there seems to be little to no discussion of the study itself.
Another researcher who doesn't seem to understand what PEM actually is. MEAction are promoting the study,...
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