and that the symptoms can be experienced as disabling”. Now that is patronising spin.
Because having unexplained seizures, and having to deal with moronic psycho-babbling pseudo-explanations about it from doctors, could not possibly...
Yep. There should be zero tolerance for this abusive fraudulent behaviour, and it should be very public too. Name and shame and permanently blacklist.
Not too much of a burden then? Just asking.
Which is ironic, considering one of the arguments from the BPS club is that (uncontrolled) PROMs should be given greater epistemological status....
Add me to the list of those unimpressed by this 'case study'. This was no accident. :grumpy:
I think this is very important: The response is not linear. In one sense the most important management tool patients have is learning to stay...
I really want to see the hard evidence for that claim. :grumpy: Without doubt the single most important management tool we have at this point....
One could also imagine that he is being managed out, in a somewhat face-saving way.
This. The whole notion of a 'baseline' is seriously distorting understanding of ME.
True. But it can put an upper limit on the size of any placebo effect, including ruling it out completely if the placebo and no placebo no...
mumblemumblehandwave*biopsychosocial*mumblehandwavecough
Good. But how many of those trials also had a no treatment, no placebo arm? ––––– Placebo effects are not nearly as powerful and long-lasting...
If it doesn't work, and especially if it hurts you, then it is your fault.
They do the same with the no-nap advice for ME patients (coz 'sleep hygiene', apparently). But half the world naps. It is completely normal and...
BACME supports grading activity strategies when delivered by an ME/CFS specialist clinician to make increases and improvements in physical,...
That Ioannidis chap is proving a mixed bag.
The shameless grift continues on without restraint or care or accountability.
Straight fraud and cruelty. These people are a fucking disgrace. :mad::mad::mad:
If we ever get a clear biomarker profile for ME, I think it quite likely it will be a much more common problem than we currently believe. Good point.
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