This makes me think, and rightly ask the question from a patient perspective: why on earth do we not have ME clinics that offer these as standard...
It feels like we are missing some measures doesn't it. We need objective, but then there is the issue of it not being a 2-day CPET (but that not...
I'm not sure - it just makes me sad the limitations of how these trials might be read. A 14% increase in exercise tolerance over 40weeks, with...
Don't apologise, I don't think that you can assume anything is uniquely one or the other - and even if it were those who chose to publish it as it...
Anyone smelling the selling of ACT just replacing CBT?
I find it unforgivable how seemingly easy it would have been for the NHS to have tried these out as relevant and sensible and to have collected...
I get exactly the same thing and always have for many years. My calves through to under shin bones have always been the most regular for the...
It has suddenly struck me that one upshot of not providing clarity regarding the service is that people 'sign-up/go along' to find out it is...
I'm incredibly sensitive to anything not soft enough and it has to be cotton (temperature). This is to the point that I've had sheets in the past...
TMJ seems a random one to throw in there for them. What do the dentists that often deal with that think of it? But yes this comes across as...
Agreed. If there was any way of making it possible (and I think the ambiguity of individual's different personal threshold levels being...
The issue actually is when basic sense and science contradict their pet nonsense they write some pseudophilosophy-code to claim it doesn't, or...
It has turned into a political gadget (there is a better word I can't reach right now), if it wasn't always intended that way. Seems that...
I've cut down to just this quote because I LOVE it as a point to be made. You've also made me think - why is an impact section (given it is now...
Yes. There was another thread somewhere that I was noting the issue seems to be a lack of education in the sector with regards research. We had...
Could that basically mean a test that is less damaging, and certainly more safe esp for those who are mild, is actually possible from this? I say...
Two big reasons: 1. the CFS description was such a weird hypochondria mixed with 'exercise avoidance anxiety' along with actually prescribed in...
Ohhh so naughty. And sinister having the biopsychosocial screenshot crowbarred in so many times. It feels like an obvious PR to try and cover for...
I think that all this terminology needs clarifying but in a 'process list' type format (diagram or something). We've got PEM, and rolling PEM...
Worth a read of this report. I found it so frustrating. Basically confirms the same crux of the issue. Forward ME have got a big job because it...
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