Well yes, we did have post-viral fatigue, at least we assume it was a virus that caused the acute illness. I guess I'm just trying to convey...
Just the other day, I saw a paper reference an earlier version of the review, not the 2019 version, but maybe a 2016 version. I forget where I...
I wasn't suggesting that the three of us in my family definitely had post-viral fatigue, that's why I put the doctor's diagnosis in quotes. Just...
For sure, a desperate need to lie flat is part of my experience of PEM. And there is something about being upright that is a problem, such as...
Link to a video where Merryn's mother talks about the issues Merryn faced getting help with nutrition: Merryn Crofts - media and inquest (link...
I do like Figure 1: [ATTACH] "Fig. 1 Until the biology is better understood, we favor a framework using post-acute sequelae of SARS-CoV-2...
True, although it's kind of the fundamental flaw with the illness, regardless how it is diagnosed. I'd bet on a well thought through emailed...
I haven't been able to find a published paper for that work on trimetazidine, perhaps it's still in the pipeline.
Incidence of myalgic encephalomyelitis/chronic fatigue syndrome in a large prospective cohort of U.S. nurses Natalia Palacios, Kathryn Fitzgerald,...
An old study, but still influential I think, driving recommendations for sleep hygiene including forcing a particular sleep onset time and...
How do you know that @Ravn? I looked at the bits of the Act that I thought would be most likely to say that, and searched on 'quorum', and I...
My list of possibilities wasn't meant to all happen in one study. For a study where activity was kept within a range, you would probably want to...
Preprint Medrix: Dynamic Epigenetic Changes during a Relapse and Recovery Cycle in ME/CFS - Helliwell, Tate et al -2022 I'm not sure if we have...
A great find @mango. Interesting to see Gordon Guyatt of McMaster University as a co-author. Relevant to the Cochrane Exercise Therapy review...
:rofl: That video reminds me a lot of Diane Morgan as Philomena Cunk. It would be laughable if it were not presenting such a warped view of Long...
A number of posts have been moved to What medical specialty should look after ME/CFS?
Posts about Wessely's connections with lawyers have been moved to Who is Simon Wessely?
Thanks to forum members who co-authored the document.
This is a very good guide to managing people with severe and very severe ME/CFS that I had missed earlier. Thanks to @SNT Gatchaman for alerting...
From the announcement above: Is this a good thing? Does anyone know what the care pathway includes? Possible even just the idea that they have...
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