Paul Keeble: S. Need for community nursing after discharge. Many don't need tube feeding. Community matron in August was still making safe...
MEAI: Sarah Boothby asks the coroner why Dr H uses the ‘chronic fatigue syndrome’ label Dr H says it’s the more current term & used with ME on...
MEAI: Dr H is thanked by the Coroner & questions from floor will be opened after a break They will pause proceedings til 12:30 **** Thanks very...
Jason S: All ME patients are complex. Nutrition and feeding is a central issue. Precedent now established but this was novel with Maeve. Now...
MEAI: Dr H: When someone audits that feeding records aren’t filled properly the audit is repeated regularly & training of staff happens If audits...
MEAI: Dr H: lead clinicians will be able to draw on other services throughout the hospital as required Coroner refers to someone during the...
MEAI: Dr H: refers briefly to the meeting Dr Strain attended with Devon ICB around the need for commissioning for Severe ME Sibylle Dahrendorf:...
Paul Keeble: C Dr Strain in charge of eLearning. H He is working with NHS England on that package. Steve Fifield: Coroner / Dr Anthony Hemsley...
Jason S: “Because the condition is so variable no admission package has been developed”. This doesn’t make sense. Most very severe ME patients...
MEAI: Coroner asks if there is a way that it could be ensured that if someone with a severe ME who accesses care meets hospital staff who can be...
MEAI continued: Dr H: has thought about training to avoid harm Hospitals are complex places now so range of options available eg a ward that is...
ME Advocates Ireland Coroner understands that if someone like Maeve needed to see a dietician in own home they would now Dr H: the community...
Steve Fifield: Coroner / Dr Anthony Hemsley Coroner not clear who she needs to approach. Believes it needs to be Government. Write to DHSC and...
ME Advocates Ireland: Dr H: only a small number of patients with Severe ME , 5 per year, come into RD&E They have 7 patients on their existing...
ME Advocates Ireland tweeted: Dr H: (gist) Something would need to change to accommodate Severe ME at national level Coroner refers to need for a...
Steve Fifield tweeted: Coroner / Dr Anthony Hemsley What was NHS guidance? Symptom relief, non acute basis. Not severe. Energy management,...
continued Dr H: The consequences were that anyone requiring treatment in Devon they would provide care to there best possible standard With Maeve...
MEAdvocates Ireland tweeted Dr H has stated that the Trust is not commissioned to provide treatment for severe & very severe ME at the time...
I'm not particularly surprised that there would be a mild association between joint laxity (even if it is just one set of joints such as knees or...
Yes, I guess a question is, is the web team generally sloppy, and outdated reviews of all sorts hang around like a bad smell? Or is it just with...
Separate names with a comma.
