It is very good. I'm so glad you have a father who understands the situation @Yann04.
I think the trick might be in the word 'specific'. As in: There is no treatment that is specific to ME/CFS. But, (in case you hadn't heard), CBT...
Great analysis Karen. @siobhanfirestone, you are right to point out that the selection criteria for the PACE trial was loose, and that it is...
Yes, it is hard to understand. Just for clarity: The 2021 NICE ME/CFS Guideline is NG206. The 2007 NICE CFS/ME Guideline was CG53. Even the 2007...
I think Sarah is talking mainly about the ME/CFS guidelines having a problem: but my comment about doctors being able to deviate from the...
My bad and all that, I was busy yesterday and didn't bother to look beyond the abstract, even though I knew the percentage reported would be...
I am certainly not an expert in this, but my understanding is that the NICE Guidelines are only suggestions, not mandatory requirements. That is...
Latest petition update: 1 October 2024 Enough is Enough Thanks to our supporters Thank you so much to all have signed and shared the petition...
Looking at the data, there was a bit of a trend to the creatine group having slightly better results than the placebo group in terms of fatigue...
The abstract says that creatine supplementation increased tissue creatine levels and that people taking creatine had less symptoms over time. But...
Thanks for the analysis @ME/CFS Skeptic and @EndME. I was conscious when I posted that I was giving it a bit of a free pass, partly due to it...
Although that statistic is often used in information about ME/CFS, it is based on scant evidence. The time since onset seems to have a big impact...
I don't know what the +- is, SD? But it doesn't look as though even all the people who didn't drop out experienced a benefit in fitness. Peak...
Unfortunately, small sample sizes - only 8 PASC. And with the data coming from samples from seven publications, there could be problems with the...
Useful review paper out: The persistence of [ME/CFS] after SARS-CoV-2 infection: A systematic review and meta-analysis, 2024, Dehlia et al Finding...
From the abstract, it looks like a useful paper for advocacy. Very good conclusion. Of course, who knows if it is 50%, and I expect there were...
We have had a complaint that this thread is becoming very hard to follow and the moderators agree. Please remember that the topic of this thread...
Thanks for writing about your ME/CFS and recovery @siobhanfirestone. Sorry the mods didn't see your question about where to put the thread. The...
I read the story a while back, and I agree. Well written and easy to read. From memory, Lily reports having chronic EBV, with periodic flares...
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