Thank you!
Or at least to draft the article about it. Which I would, to be fair.
It's always possible he was just bored witless and couldn't be bothered. Which is a perfectly valid response to a psychology exercise like this,...
Oh, thank you! This ruddy thing's a nightmare to get through. :blackeye: So most of the exclusions seem not to be due directly to being diagnosed...
I wondered if there was anything on the diagnostics side. As they wanted participants who'd become ill in a limited time frame the majority of...
It might depend on where you are, and whether the funding is private or public? Private foundations have a lot of discretion, but it's hard to...
Well, ill-informed at least. I talk about planning because it's a useful word. But I usually add that planning changes constantly, because it's...
I wonder how many pwME would have been able to work that out, given that they were in a very unfamiliar situation and almost certainly well into...
I guess logically, it wouldn't. If a treatment shouldn't be used because it doesn't work and isn't cost effective, there's no point expending...
Ugh! The trouble with these function tools is that they never begin by asking what day you're on. Broadly speaking, I have four types of days:...
I have more of a problem with the name than the underlying concept. Even assuming they've understood and applied the test appropriately (and I...
The same the way they set up the test of people's ability to speak Polish for 20 minutes. They didn't even entertain the idea, because it would...
Very true. But out there in the normal world, you often meet with the same team (consultant or registrar) for extended periods, meaning you get...
If some of the questions are not asked, or not regarded as important, in other diseases of energy limitation, would that be part of the reason for...
Don't think he'll be mistaken for someone who knows anything about anything, TBH.
Good points. I suspect many of us do our best to escape the culture by not participating in these clinics once we've been diagnosed, learned the...
This is key. But I'd still like to know who the forms are for. Most pwME are managed by GPs, as almost no one in Britain seems to have an ME...
And is anyone going to do it? I've never had an assessment, and nobody monitors me the way the rheumatology and asthma clinics do.
Patients will only be able to give useful answers if the questions are related to their real lives. They can't compare themselves with someone...
Apart from the use of CFS, I think it's rather good. I'd change "extreme physical and mental tiredness" to "mental and physical exhaustion" and...
Separate names with a comma.
