I think it's more a request for what information someone holds about you, where they got it from, how they use it, and whether they've shared it...
If it's only viruses, couldn't stool be PCR tested? It wouldn't show tissue abnormalities, but it'd likely pick up the DNA of enteroviruses....
As far as I can make out, none of them are. Practitioners are the modern thing! Doctors are expensive and not all of them stick to the script.
I too get muscle weakness after activity that's challenging enough. The main characteristics are that it's relatively short lived, and there's an...
I mean anybody with a bit of paper showing they've been on a course. It doesn't matter whether it was occupational therapy or psycho-something or...
They must be getting desperate. What was it Desmond Dekker sang? "Shirt it a-tear up, trousers are gone"? "Po-o-o-or me."
Yes, but only if it does have doctors. Doctors with an interest in conditions like ME. The trouble is that practitioners with six months'...
In Britain, there's been some talk in the press about Covid jabs possibly being available for sale next year. At the moment they're only provided...
From @MSEsperanza: It seems they have a new name: WE&ME Foundation https://www.weandmecfs.org/
Not sure they quite get gaslighting. But anyway, of course they shouldn't pretend they can help, and yes it's demoralising for both groups. But...
From @MSEsperanza – Via Martin Rücker/ Mastodon: "Schwer von #MECFS betroffene Künstler*innen haben in einem großen Kraftakt eine Ausstellung...
There might be more than one answer, depending on what's needed from a particular consultation? ME's not something that could really be dealt...
Not at all! I didn't know it had started because I couldn't feel very much. The cable got into a loop at one point near the end of the procedure,...
From the project website. It reads as if they're only working with people currently having treatment at one of these centres, but I don't know for...
Whilst Esther Crawley's name has a habit of inducing a tic, is this not useful to pwME in some respects? It would be interesting to know if there...
Norwich has been trying to establish a centre of excellence for some time, and it does seem as if we need a couple of these to shift the centre of...
63 pages though ... :confused:
Or because your GP has logged you as at risk. I wasn't considered at risk for most of the pandemic, but I got the booster in May for that reason,...
Even if somebody was scripting a new Whitehall farce about how not to improve perceptions of contested illnesses, the Solve story would still be...
I remember re-reading a history essay I'd drafted on the bus when I was 15, and doing the calculation about whether it would look to the teacher...
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