Yes, I couldn't agree more. I feel quite desperate about it sometimes. I keep saying it but I feel like i'm 'shouting into the wind' sometimes....
yes me too. For me it usually takes 4 days. For me it's the lack of any fluctuation whatsoever with flu/virus... & it's on day 4 of thinking 'wow...
innit… yeah innit :D
Improving sleep.... They really do think we are all as thick as 2 short planks. I mean would it ever have occurred to you that if your bed was...
my bold It feels exactly the same. To the extent that I have mistaken flu/infections for PEM a few times. I only realise that it's actually...
this. I have had people suggest that I cannot possibly be as ill as I & my carer report me to be, because if I *were literally unable to stand...
Wow talk about starting the gaslighting early, it's on the first page! So if the person ends up worse instead, because of your misguided...
How are you doing @debored13 ? I hope you're managing to stay warm
ahh, yes, so that then puts the onus on them to prove objective benefit? crikey, I can see how our arguments have been so easy to dismantle &...
Thanks @Jonathan Edwards I think I'm beginning to see the complexity. So patients saying ''X' makes me feel worse", actually can be seen as not...
yes I know just what you mean Kitty Precisely Barry, that's why I cringe every time Dr Shepherd says it (brilliant as he is at so much for us) I...
this
agreed. That's why the MEA's description of 'exercise induced muscle fatigue' in their 'what is ME?' information, is so unhelpful imo... because...
such a good idea Trish It's a bummer. But perhaps we need to rephrase what we say so that instead of saying 'causes harm'.... I just considered...
Thanks for that @Lisa108 I'm way too foggy to even read the whole paper, but I managed the Conclusions. But i still cant really make head or...
Am hugely appreciative of all the hard work our representatives are doing. But i'm afraid i'm with @Esther12 - i'm not expecting much of an...
The sci-hub link no longer works, after so long thats not surprising but I cant really tell what they're saying from the abstract, not sure how to...
Every morning without fail I have an amount approx the size of an almond of brown or yellow phlegm. I have to spend a few mins clearing it, it's...
A huge well done thank you to Elizabeth for sharing her story. It's so very sad, and angering, to hear about what happened to her. Unfortunately...
they are so thick honestly. It's cumulative... the activity threshold for triggering PEM is CUMULATIVE. He did a lot more phsycially so could so a...
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