Probably because a lot of PWME and clinicians don’t look much beyond fatigue as a description of what’s wrong when as we know it’s a whole bundle...
I didn’t really register what PEM really was until I started reading materials from ME Association which would have been towards the end of the...
This information from MS Trust in the UK suggests that the life expectancy for people with MS is around 10 years lower than average...
What right do they have to dictate what “good” rest is to anyone.
Excellent articles @Andy @Chris Ponting :thumbup:
I think the fact that numerous alternative narratives out there,that some people diagnosed with ME/CFS themselves buy into around “what helps”...
Similar scenario with the Hillsborough football disaster, dragged on for many years and ultimately a tv drama broke through with the public. But...
Yeah clueless
Do you have a link to the article for those of us not on X
There are multiple elements An individuals own financial resources family financial resources and relationship or lack of one with family...
They modestly describe themselves as dedicated which would appear to be how they perceive their pursuit of their huge vested interest
Definitely didn’t notice intolerance when mild/undiagnosed. I could drink a bottle of wine in an evening at weekends, which is loads compared...
Suggestion as treatment Abracadabra
Ugh just ugh
Missing two letters from the world effective In….
Thanks Jonas:thumbup:
Good summary @Andy Final bullet last sentence how about As will if their circumstances allow them the possibility of pacing activity.
Hi to all following a flurry of signatures by Swiss PwME in the last couple of weeks the petition total now stands at 9780. if you have social...
Ageusia is loss of taste for those like me who hadn’t heard of it before.
True but at least closing it down isn’t wasting money on useless CBT based pseudo treatment
Separate names with a comma.
