How is this compliant with NICE 2021
I think there is definitely a need for something to be done urgently to educate professionals about severe and very severe ME and learn lessons...
https://www.mefoggydog.org/. I think people are entitled to make different choices about advocacy activity. Working in larger groups or...
It’s got 490 shares so far :thumbup:
Good article :thumbup:
only those wearing FND expert hats have the special insight needed to truly understand.
Poor start even BACME have started using ME/CFS now you’d think newcomers would educate themselves better. :whistle:
I thought the idea of another disease comparator was to test the results applying to ME rather than chronic illness generally
Thanks to Millions Missing France for their latest share of the petition complete with a short video message...
Cognitive deconditioning I don’t have Fibromyalgia but presumably this lot would/will make similar claims for ME I don’t have any cognitive...
I wasn’t asking you specifically @Andy maybe others will have picked up
I hadn’t heard of stress induced exhaustion disorder according to Wiki it is only used in Sweden https://en.wikipedia.org/wiki/Exhaustion_disorder
Have any of them confirmed on their own twitx that they are definitely involved?
Is this only being communicated through twitx still? Do they not understand people’s concerns with that platform
@Suffolkres will likely have background on Norfolk Suffolk
https://www.niaid.nih.gov/diseases-conditions/common-variable-immunodeficiency-cvid#:~:text=Common%20variable%20immunodeficiency%20(CVID)%20is,also...
Chalder fatigue scale :whistle:
One of the tables shows lower diagnosis in areas of deprivation ie as well as lower diagnosis for minority groups it is also based on class as...
Well summarised my experience also. Sedation is not sleep
Yep. Transparency and accountability
Separate names with a comma.
