The lack of action on this is disgusting considering how simple a task it would be given the wording could be drawn from the NICE guidelines.
Yes I saw that very severe is included in the description of the person completing the questionnaire’s overall level of ME, I’m one of those who...
Given we could be having a general election any time from May onwards it is the twilight of this Parliament. Hopefully the APPG can pressure Dept...
Comment posted by Dr Charles Shepherd on ME Association Facebook post about the C4 News report “Very good media coverage of what happened to...
Bearing in mind that CFS clinics use stuff like Chalder questionnaire HADs etc having a product that can be used to move them away from that will...
GHQ 30 blimey I would imagine the population at large would tick 5 of those
I hope Prof Matthias Kohl will be able to provide such reviews of many more such papers also then possibly publish himself on persistent flaws...
https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review Current total is 10,498
I’d suggest if you’re able to do this fill it in to the best of your ability and take the opportunity of the comments box at the end to give...
Well done :thumbup:
What sort of bowl do you use @Sean
As people who have ME/CFS are being told no you have FND or CFS is under the umbrella of FND we have every right to take an interest as it affects...
I use microwave rice too as one of my PEM easy food options particularly. Tilda basmati quinoa is my favourite. Sainsbury’s own brand brown...
@Wonko I’m sure you’ve mentioned rice cooking in previous discussions
I don’t think it would be at all easy to do this without it being misrepresented
I presume ME Association are aware of this but have pinged them a message just in case. ETA. They have confirmed they are aware :thumbup:
Shouldn’t be anywhere near NHS
Good point @JemPD
I’d like to see them take this approach with whatever professional body exists for palliative care
One of the issues with OI is especially with less severe ME not actually realising that OI is a problem for you or understanding what OI is how...
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