Hi can any forum members based in Austria or Switzerland help with information about ME Organisations? We have contacted WE&ME Foundation -...
Also should have mentioned if someone would be able to volunteer to translate a message (couple of paragraphs) into German that would be great (I...
Thanks @EndME. Eta I’ve now sent a message through the English language web form.
We’ve got some German organisations on our contact list we’re working through for the Cochrane Advocacy. German Association for ME/CFS |...
I’ve only skimmed, there is some interesting information, a lot could no doubt be interpreted differently by a different reviewer responses show...
Sadly not a novel reaction to the sermons of this pair
Freudian slip
Agree and not just slower speed, posture/gait affected.
That’s good news. When we get new organisations signing and sharing the petition numbers get a boost. It’s also helpful for organisations that...
I wonder why they chose this medium rather than others
And that shows why pushing back on some funders may be difficult.
Agreed. Having had a parent diagnosed with Alzheimer’s at 59 I think it’s the right approach to set a limit.
19 October 2023 ME Association announces post mortem research partnership with Manchester brain bank...
19 October ME Association announces post mortem partnership with Manchester Brain Bank...
Funding is from government bodies in various countries so that would be a big challenge....
Side effects and timeframe of at least 6 months are very important aspects on any report of individual improvement. I’ve had prescription...
Don’t know but definitely a positive step, maybe ask for advice about any steps that could be taken within parliament eg the APPG approaching...
Hi Mike if you do get in touch with any people/organisations there maybe you could mention the petition to them?
Randomised clinical trial for random clinics
So what do they mean in the conclusion by the self regulatory process being initiated from the onset of symptoms. Changing perceptions??
Separate names with a comma.