"exercise intolerance" is not "well characterised" if existence of PEM is not investigated, as does not seem to be the case here - I certainly...
$16,239 raised, 24% of target, 20 days left https://crowdfund.berkeley.edu/project/40018
9,424 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review
Well, sure, I get that but I don't get the argument that because that happens there shouldn't be an attempt to formalize PEM with a diagnostic code.
So don't have a code for PEM because Nath can't get his head around how different patients might describe their experiences? I guess then we...
Thanks for taking part, and for giving two samples. Obviously the important part is that you received confirmation that your second sample was...
"Mistrust of functional diseases like ME" Functional? In the sense of FND or does the original word mean something different?
Richard Horton on the UK's Covid enquiry, "A former minister for health in England wrote to me that “The COVID-19 inquiry will make us the...
Frankly, I think that Cochrane owe it to the community to publish the details of the complaint, given that while they talked endless about how to...
I have no understanding why receiving a complaint then should mean that you shut all communication down completely. And that it should take...
Manages to avoid talking about ME/CFS as much as possible while still talking about "post-viral fatigue" "2.3. Diagnosis and treatment of...
Background: Fatigue is a main or secondary reason for 10–20% of all consultations with a primary care physician. Methods: This review is based on...
Thanks, don't know why I put Sweden. I'll change it.
Update on access to the DecodeME questionnaire next week, posted on all our social channels. "Our supplier has told us that essential maintenance...
And on a scale of 1 to 5, how would you rate that suffering???? ;)
Gatekeeping and bias how? All members are free to start a thread about anything that fits within the forum's remit and the rules that all members...
Study Overview Brief Summary A Diagnostic Clinic for Functional Somatic Disorders (FSD) has been set up at the outpatient diagnostic center at...
Study Overview Brief Summary The complex clinical symptoms of post COVID syndrome, especially chronic fatigue, pose a major challenge to...
Study Overview Brief Summary To further characterize Long COVID-19 by collecting data from individuals who already own wearable devices or are...
Study Overview Brief Summary Psychological distress (anxiety and depression) is common in and experienced differently by people living with...
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