So we have a pattern of BPS supporting articles from Neil Riley disguised as personal anecodotes, going back decades, and now a pattern of...
https://bsky.app/profile/mayalindemannrn.bsky.social/post/3lbteqexpfs2n Post on Bluesky: @meassociation.bsky.social epic failure to listen to the...
I also think this feature of ME/CFS where people decline after crashes and don't recover to their previous level is really important, and not...
Hi @Caroline Struthers, I'm starting to prepare for a possible next step in the S4ME campaign, probably a complaint to the Charity Commission on...
Not my experience. I've always pushed to my limits and suffered PEM as a result. The idea that I would stay so much below my limit that I never...
Well done, @Wyva. A thorough debunking of the article.
:hug:
I am trying to imagine a better spin on what is happening. Maybe the trustees are having emergency meetings to resolve the situation, including...
On the MEA Ramsay Research Fund, there's a post on Facebook today from Charles Shepherd: https://www.facebook.com/meassociation/?locale=en_GB...
She's friends with Wessely/Gerada. I think the only way some of that clique can hold on to their beliefs about ME/CFS is by demonising pwME. Some...
Probably ME research UK, or directly to either the UK ME/CFS biobank or Chris Ponting's team.
Couldn't the cause-effect be the other way around? In a fluctuating inflammatory condition, reduction in inflammation and the consequent reduction...
Thank you so much for all this effort, @forestglip. There was no way I was going to manage to watch these, and your summaries are great. I also...
Week beginning 15th April 2024 Cochrane have sent a brief response to the latest Science for ME committee letter in which we presented the...
Maybe muddling up different things here. From a pwME's perspective, of course symptoms are central to our experience, but it is the pattern of how...
All this shows is that depression questionnaires are not suitable for people with physically and cognitively debilitating conditions like ME and...
I think the delay is standard for theses, so they can get papers published in the meantime without the big reveal coming from the thesis. In these...
I had my flu and Covid vaccines a couple of weeks ago. I am on my GP's list for elderly housebound home vaccinations. I managed to get my daughter...
It's difficult for those of us who stopped being MEA members a few years ago. I don't have voting rights or any right to have a say in what the...
I hope you recover quickly, @AliceLily.
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