If numbers were on the outer bounds of normal range, then I would tend to think that a trend (whether the number is moving in or out of the...
I do hope it’s been a damp week and the fire is a garden burn off with proper brick incinerator or a nice blaze inside a wood stove to dry out the...
Thank you for this. I recognise the experience much better in these questions. A couple of possible tweaks: I know that questionnaire methods...
Could someone please direct me to an up to date summary of ampligen? (=Rintatolimod) I did google and find it on MEpedia but it looks like it was...
Oh, and also from the same thread: Studies to test the effects of GET and exercise in general on pwME. I am aware that there are ethical...
I’d like to second one of @Alice’s suggestions here: Feedback from Stakeholder Engagement Workshop for the NICE guidelines on ME, Jan 2018 About...
Yes I think so. I don’t think I have OI (as others on the forum describe it) but I do now (only figuring all this out over the past few months)...
On a personal note: ooo! Me me me me me! ... :/ always it’s research for other patient groups (oh, you’re not sick enough, young enough, living in...
I agree with your idea I think but would approach I differently: I’d like all the literature reviewed and analysed for flaws in methodology, and...
I’d like a review of all research involving ME/CFS (or variants of the name) which breaks down results by diagnostic factors used and observed...
:woot::laugh::rofl::geek:
Funny you mention it as, just in the last 2 days, I’ve been trialing the brain cooling approach I read about for MS. Ices to cool the upper...
I would think so. But i’m a relatively recent onset and over the New Year someone asked me if I think i’m trending better or worse. I said that my...
All great comments, want a stronger like button. Clarification on ‘trigger’: yes exertion is by far and away the main trigger. However, sometimes...
Yes. Yes but I can see it both ways. The trouble is less about use of judgement (which unfortunately is always going to be present in some form -...
Wow Wow, I thought I was doing well reading to the blue part but there’s more! Sorry i won’t be able to read more before replying. 1) yes. It...
It's a good story and I am impressed with the writer and his wife. I used to love stories like this in which people push the boundaries of what we...
I agree, there is a huge amount of overblown hype and it can be hard to sift through it all. I'm having an off-day. Not a crash but not great...
I don't know of any specific healthcare for ME/CFS. I'd love to be wrong on this, that's why I'm here, looking. [So although I am not in any way...
I think the latter more than the former. But I live in a country where healthcare is generally affordable (free if declared low income). Having...
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