Sorry to offend you, @petrichor. As a new member, I thought you might be genuinely interested in knowing that other people's experience is a...
Nor me, @NelliePledge. I've been on a similar restriction (lost 6kgs since September), and the only benefit is that I no longer experience...
Well, with intelligence, you can at least measure performance on difficult cognitive tasks. I would call that objective (although other may...
Nicely said, @Barry!
Good find, @arewenearlythereyet. Although if we want to use this scale in MECFS samples, it needs to be validated on that population. Controls...
Your symptoms are quite unusual, @petrichor. For most of us, our activity is not primarily limited by current feelings of fatigue, its limited by...
Oh, this is really nasty stuff, @Kalliope. It starts off all innocent about "soothing and alternative therapies", but then gets quickly into what...
I don't think it was anything like that. Its not like my dinner consisted of lots of sugar (never dessert or sweets). I did have pasta when the...
I also get this. The worst sensations would get me in the evening, after an evening meal. I would feel so full I couldn't get to sleep. Even when...
I'm no doctor, but I'd be playing down the CFS angle as much as possible. Noting that was your diagnosis prior to the discovery of RP. And that...
Perhaps its that I don't know enough yet, but I always get the feeling that the gut/microbiome is the NEXT BIG THING. And I feel sceptical about...
Maybe we should start an S4ME picture library for the verbally challenged: [ATTACH] [ATTACH] [ATTACH] [ATTACH] [ATTACH]
I tend to agree with @Andy. People like this should be called out on their bs. Politely and patiently, we should expose it for what it really is....
Yes. If we made it a "thing", then we could raise questions about the motives of a research groups who choose to select their own patient advisory...
Thanks for posting, @Sly Saint. It has some good information, but also some that's incorrect/unjustified. It would be great if they could...
What an absolutely fascinating idea! I love the idea of a group that are selected by the patients, rather than by the researchers to best suit...
I don't think I've explained what I mean by everyday memory very well. A lot of things that seem like memory failures are not actually failures of...
Update: I've had a few weeks on which to observed myself on the ranitidine, and unfortunately, my conclusion is: no effect. My pattern is pretty...
Thanks, @Subtropical Island. What you say sort of complicates things, because if everything's uniformly bad, then we don't have any leads on what...
I do think it can be good sometimes to have an objective other (not a friend or relation) to bounce ideas off when you're in distress. Sometimes...
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