Been having more than the usual gastro trouble for a few months. Long story short, I now have Barrett's esophagus to add to my fascinating...
Do it. Don't waste your life, or allow to be wasted by idiots like this.
However, other symptoms such as dys-pnea, chest pain and anosmia are common in Long COVID, but rare in ME/CFS. And multiplicity of symptoms is a...
One of the more shocking discoveries in my early journey through the medical literature was just how weak, to the point of non-existent, is...
It is usually the mediocrities that do the destroying. It is the one thing they are not mediocre at. I wish that was a joke.
Could go either way. Which is the problem, isn't it.
Very good article. One small error: My mum graduated from medical school in 1984, the same year that ME was joined by a second name - chronic...
Ah, the old it doesn't match what we [believe we] see in the clinic therefore the trial data must be wrong gambit. So why bother with trials at...
And PEM, in this context, could be described as a worsening of the overall symptom profile (not just 'fatigue') after activity, typically with a...
Denial is a hell of a drug.
is now understood to fundamentally alter the body’s ability to generate and use energy. We don't know yet if this is an energy generation or an...
No argument there. I just meant if one is going to use intolerance then activity is a more inclusive and accurate word to use with it.
Just another reminder that we often don't know what we don't know. The old unknown unknowns problem.
IIRC, most studies don't look at severe patients. I agree about being careful of using terms like exercise intolerance. Activity intolerance is...
This, plus simply refusing to accept any adverse judgement on the sacred PACE and continually re-citing it to give it legitimacy, appears to be...
I felt the same when I first started learning about the situation and history of it all more than 30 years ago, and it still feels the same today....
While we may not yet be in a position to do something similar yet, this has certainly help expose systemic failures and cruelty in our current...
Not just from absenteeism, but also from reduced performance of those who physically make it into the office/factory/etc.
and shows exactly how far we have to go to unburden the ME community from this cruel culture of misinformation. And the vicious decades-long...
It is characterised by persisting patterns of physical symptoms that cannot be better explained by other physical or mental conditions. It is...
Separate names with a comma.
