One more, and we'll have 3704 x Nelson. :D [SPOILER] ETA: Completely inaccurate. Never, ever trust my maths. :rofl:
Exactly. If that proportion of any profession were shown to have ME/CFS, (a) there'd be an enormous amount of interest, and (b) the profession...
Funny, though, that there's been no trial of the reliability, accuracy, or usefulness of questionnaires, yet they can be assumed to be a valid...
No, I say P-E-M, and most of the people I know do. That might be the reason I think it's the norm and 'pem' sounds really weird, though! :D
If WE&ME is on Twitter/X, I wonder if they'd be willing to draw the attention of Österreichische Gesellschaft Für ME/CFS to the petition? They...
There's also the issue of academics being expected to publish ever more papers, ever more frequently. Why? Surely they should be judged on the...
That's an interesting point, actually. The questionnaire seems to acknowledge that pwME might do tasks more slowly than a healthy person, but that...
I can see the argument for that being justifiable in relation to sources (though I'm not sure I necessarily agree), but there's no harm in...
Sorry for the duplicate post, I did a search before adding it but obviously picked the wrong terms.
Exactly, that's what I meant about using them in other contexts. More than one GP at our surgery has suggested using them for activity and heart...
https://www.nature.com/articles/s41586-024-07501-1 Also reported in The Guardian (UK):...
Ohhhh, they're well worth reading! There are a lot of them, and it will probably make most sense if you read them in date order as and when you...
I really like it too. As @ME/CFS Skeptic has added a heading examples of excellent reporting, I wonder if next to it there should be a category...
I'm suspicious about the motives behind the assertion that technology isn't acceptable to the NHS because of accuracy, privacy, or whatever. Not...
They probably understand that if you keep using the same system, it effectively is accurate. The scores don't need to be absolute, they only need...
Why categorise less than 30 minutes' activity as an adaptation? Nobody would call it that or understand it as such. Why not just 'no'? As for the...
Thanks, that was what I was thinking. If people are told this, any who have enough experience to be aware they'd only received a smallish dose...
Yep. The fact that doing activity has disproportionate consequences is pretty much a definition of ME.
This is too confusing to parse. Adaptations could be considered separately at the beginning. As it is, I'd have to indicate repeatedly that my...
I don't think I was really aware it existed. Maybe the first thing to do is to see if the wiki will accept a note saying the page is in the...
Separate names with a comma.
