Most people with a 'proper' chronic illness have an annual review, don't they? I have them for two different conditions, neither of which impact...
I'm a bit torn on this one. PwME should have access to consultants, but those doctors need training and experience first. Is it better to put...
It'd be hilarious if still being ticklish was our get-out for being diagnosed with FND. :D
The government thingie, that got put on hold when the election was called. I'm so brain fogged I can't even think of a term to search for it! :rofl:
Good idea—maybe we could ask for it to go into the action plan, or whatever it was called? It's not difficult to do, especially if a simple...
More often, the pretence seems to be that we have a disease model of ME in humans that we can somehow replicate in non-humans. We don't. There's...
I don't know, but the point is that it should. PEM is what matters in ME, so that is what should be measured, assessed, or whatever. New patients...
ETA: Sorry, I started writing this some time ago in response to earlier posts, but it looks well out of sequence now! I agree very much with the...
Galway
At least there's some observable pathology. In ME, we've no idea what the pathology looks like; until we do, we can't even know whether or not...
I wonder if this might usefully be expanded to include peaks of onset? The 'most common in people between the ages of 40-60 years' is true from...
There are, but it's not an unusual situation. A patient or participant can be taken through a lengthy diagnostic process, an answer can be found,...
My ten bob's on "because we always do". I went through my working life wondering why people did what they did, the way that they did. It took me...
And therefore quite expensive to employ. Universities are trying to cut costs, I know three people who've been offered early retirement packages....
And we're putting up with it, instead of marching through the streets.
The analysis sounds like a specific panel: People can opt out of the remaining genetic material being stored for future research, but I suspect...
I'd be surprised, specially as it's such a small cohort and there's going to be data from a much bigger one (albeit only adults) available to...
Yep! But according to the optometrist, some people just do. I noticed it 20-odd years ago, but I'm not sure whether it changed or I just hadn't...
Me too! That's part of it, but it also feels exclusionary because most people won't know what it means—it even stumps me sometimes because it's...
Disinformation is only 'politically vital' to those with certain political affiliations. You could make an interesting film about that.
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