In terms of symptoms, @MelbME, it may be useful to have some reference to time of day. I'm not sure quite what (can't think clearly at the...
I agree that would be absolutely ideal, but I don't think it's realistic until we have trained ME nurses. For what it's worth, I've been having...
I suspect it's probably just idiocy.
Welcome @Lena Kjempengren! I hope you enjoy it here. The TL;DR is that: 1) ...are very different things and it'd be useful for the ME...
:rofl: I was once collecting my dark grey bomber jacket from the cupboard behind the hairdresser's reception desk, after an hour of bright...
True, but pwME also have to be prepared for them to say, "All we can recommend is pacing." Some recently diagnosed pwME will find it hard to...
What about when the subject moves their hands back so as not to make contact? That would be my instinctive reaction! :laugh:
Inability to recall the word rifle. "Where's my long shooty thing?"
And the cognitive ones – 'inability to remember where you left the rifle'.
In addition to the ethical issues here, reports like this should always say very clearly that a proportion of pwLC (including children) will...
Dunno, but I reckon the cross-country sitting down would be the best sport to train for.
It'd be nice to have some!
Forgot to mention this. It's not the rolling—it's things like whether you can get your head at just the right angle to be comfortable, whether you...
In my experience, the big ones are equally mediocre and uninspired!* But they work reliably, and in some ways there's not a lot to choose between...
How exciting, @Evergreen! I'd advise that you try and arrange for at least one of the chairs to be lent to you for at least 24 hours, preferably...
Just to go back to the question that started me on this train of thought: are people asked about capacity for work/ study/ etc in other contexts...
I think that's rather different to annual reviews, which are by definition routine. They're not designed to manage a change in someone's level...
Blimey, they're clueless, aren't they? I'd question the professionalism of a company that can't even be bothered to read a few paragraphs of...
My GP practice does both my reviews, even though I'm also reviewed by the rheumatology team. I think it's quite normal for primary care teams to...
First posts copied and others moved from UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist...
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