I wish they'd tell us what bodily systems are dysregulated... ...and how they know this is happening, especially given that they don't appear...
Hope the treatment goes as well as it can, Joan. However ropey it can be at times, there is at least an end date.
You'd keep both, I guess. But for someone who has ME/CFS symptoms that can be linked to Covid, I don't see why a qualified ME/CFS diagnosis...
I can see there may be an argument for this too, but I don't understand resistance to a single diagnosis of Covid-associated ME/CFS (or similar)....
It doesn't justify information about pwME being recorded via PROMs either. At review, patients should be allowed to focus on whatever is their...
That's a very particular way to present "people who recovered quickly didn't go to the doctor's".
This looks eerily like the 1960s/70s. If women complained too much, they were prescribed tranquillisers. I was given them for ME, my mother was...
A very nice chap at one of the call centres (always cheers me up if I'm switched through to Preston, they seem to have some particularly helpful...
Me neither until it developed into actual incontinence, at which point they had to rule out bowel cancer. They seemed to regard really disruptive...
That was the doctor's diagnosis, both before and after the intolerances were discovered, so yes—for better or worse, it's the term I use. People...
For some people there are causes, it's just difficult to work them out. My IBS started almost overnight, but it turned out it was driven by losing...
You could if you had the right system, but I suppose the problem is that no one's sure what that is. PEG tubes seem a good option for people...
So at least there's evidence of the harms of lack of treatment. It's not the same as evidence for one approach over another, which I guess is what...
But there is evidence of young people with very severe ME and feeding problems dying. I don't know whether any academic case reports have been...
I'm not sure what an exhausted immune system is. Even if it's a meaningful concept, it's probably not very useful in the context of PEM. Part of...
On this specific point, I wouldn't be against a measure / toolkit for newly diagnosed people, if they want to use one. I say this because I...
I think it's okay, it's just magazine style with a sidebar. Haven't perused the contents very closely yet.
Only on Thursdays and Saturdays.
If it's true one of the major variables between groups (cognitive and physical fatigue) can't actually be measured, surely it isn't a valid...
Dunno about a comedian, but I'd pay money to read Marina Hyde describing them and their attitude. Although Frankie Boyle might have some good...
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