I agree re the lack of good data. I had a bout of costochondritis for maybe a couple of months some time in the first couple of years after...
Reference 29 is Kavyani B, Lidbury BA, Schloeffel R, Fisher PR, Missailidis D, Annesley SJ, et al. Could the kynurenine pathway be the key missing...
There are some good points made e.g. The fluctuation of symptoms and therefore 'omics measurements New technologies such as wearables, home...
Reference #18 is A Treatise on the Principles and Practice of Medicine. Designed for the Use of practitioners and students of Medicine. Atlanta...
I am skeptical about the concept of precision medicine when applied to ME/CFS right now. It works in oncology because clinicians have moved...
I don't believe that there are laboratory tests of even some utility in positively diagnosing ME/CFS, never mind 'definitive'. Again, the authors...
Introduction I'm continuing to get the feeling that the text is just a bit 'off'; it's not tight. This seems to at once be saying things that are...
But I'm not clear what the word 'complex' is saying there - 1. that it's difficult to work out the cause, or 2. that there are many factors...
I'm not sure what this sentence is saying. 'Complex' can be a code word for 'biopsychosocial' and 'psychosomatic'. Also, we don't really know...
I regularly buy a ticket in the NZ Heart Foundation lottery, it's a raffle ticket essentially, with the main prize being a house. It has better...
Announcement of their 2025 conference - follow the arrow in the quote title to the thread
On that Jeffrey et al thread, there were some accounts of improvement while on anti-coagulants: @Andy noted his experience with injected...
This study on long Covid risk factors Deriving and validating a risk prediction model for long COVID, 2023, Jeffrey et al found that parenteral...
There have been a number of case studies suggesting anti-coagulants are useful treatments for long Covid, and a number of doctors are prescribing...
Yes. I don't think it's hard - just respond to the needs and concerns expressed? Recognise that there are things that need to be better and make...
Yes, as Kitty says, there are organisations that help identify grants, things like disability service hubs. Even just internet searches can throw...
Problem A solution might be for charities to consider dropping the membership fee altogether. Even just the admin is a friction for potential...
I remember hearing a researcher a few months ago who was associated with the Dunedin prospective study that followed a sample of over 1000...
As noted in the first post of this thread: 2021 Appointment of Professor Leslie Findley to be patron of the MEA - starts here, notice of his...
The moderation team split the discussion of the MEA's governance issues from the news from this organisation. Discussion about MEA governance...
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