It's pretty good quality data, as far as anything to do with ME/CFS goes. US NHIS data Heart disease CFS I think ME/CFS advocates...
Sorry, I nodded off for a while. Back again. I'd formed the impression that SARS-CoV-2 antibody levels weren't different in Long Covid, although...
I haven't read this yet. It sounds interesting, especially the bit about soldiers effectively getting Gulf War Illness but not having been in the...
I think it's a very complicated and less than honest way of avoiding saying 'we don't know'.
:rofl: The poor lambs. It's so hard for these well-paid, well-respected doctors to feel incompetent in the face of 'a great difficulty answering...
I've searched, not very hard admittedly, but I could find no warning saying to use the BASC survey with care in populations of children with...
There are surveys that could be used in ME/CFS instead of the BASC, with its aim of identifying psychopathologies, in order to identify symptoms...
Lower levels of pyruvate than what? Healthy controls of the same age? Healthy controls of the same age and BMI?
@MelbME, @Nightsong has posted copies of the BASC-3 PRS survey on the BASC-3 thread. It is pretty obvious that a child with ME/CFS would score...
Thanks @Nightsong Yes. Here are some items from BASC-PRS A (A is for adolescent; C is for child) Complains of being sick when nothing is wrong...
I don't think that is true. There are still doctors trotting out 'stress' as a cause; I think that has been documented on the forum. There are...
But, we don't know that ME/CFS is complicated, it may be simple, it's just that we don't understand it yet. What specifically is complicated?...
@MelbME, it would be helpful to know if you have overall responsibility for the combined project, and for ensuring the participants and their...
Thanks for your replies @MelbME and your obviously good intent.
I found some slides with example items from the BASC-3 PRS. The bullet-pointed items are assessed by the parent, about their child. I think there...
There is more I could say, but I'll leave you to get on with your family. I hope, once you have had a chance to round up copies the surveys your...
Unfortunately, there is no good answer to what happens with the results of the personality/behaviour surveys. If the results, skewed as they will...
Thank you, I really appreciate you replying here. Let's not get sidetracked by questions about whether people with ME/CFS have a fear of being...
As I said, I don't think the ethics committees would have insisted on full surveys being applied - we see sub scales used on their own all the...
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