What evidence do you have that these four studies are not, in fact, MECFS studies? MECFS is agnostic with respect to the trigger.
I’ll save the UK a lot of money here. Long Covid is Covid-triggered MECFS.
https://www.prnewswire.com/news-releases/paxmedica-announces-positive-results-from-phase-2-trial-of-pax-101-iv-suramin-in-children-with-autism-spec...
Maybe doesn’t provoke symptoms because it might be a minor component relative to other bigger factors that are treated by cyclophosphamide.
Probably not a good idea to go on and off antipsychotics repeatedly like this—may lead to long term problems with withdrawal and kindling....
Around 2mg. About 4 months.
Going on and off antipsychotics is not a good idea......
Most/many people with MECFS respond positively to steroids—we’ve already discussed this and you said you weren’t sure about the mechanism.
To clarify—comment wasn’t directed at Trish—sorry for any confusion.
If a RCT trial demonstrates a 30 or 50% decrease in fatigue for Abilify that would be huge and would almost certainly earn Abilify a prescribable...
yes it is—like here for example. https://www.depressionforums.org/forums/topic/78550-abilify-has-it-stopped-working-or-do-i-need-a-higher-dose/
Correct—I agree. Which is why I was put-off by the somewhat overly-critical sentiment coming from this thread about a med originally developed for...
This first comment on that Reddit thread points out the problem of tolerance and how s/he overcame it.
This is the second partial dopamine agonist study in two days—the first was this one...
Dear @Hutan I honestly think you are being overly critical here...~50% reduction in fatigue and brain fog is pretty significant.... But this is...
To clarify a bit, the Abilify itself causes weight gain—this is a side effect.
An alternative explanation is that aripiprazole is actually effective at treating the symptoms of MECFS. Authors don’t claim this a RCT study....
[MEDIA]
The main challenge will be how to overcome tolerance/tachyphlaxis/ poop-out.
Off label use of Aripiprazole shows promise as a treatment for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): a retrospective study...
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