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  1. Jaybee00
    Post

    Erythrocyte Deformability As a Potential Biomarker for Chronic Fatigue Syndrome, Davis et al (2018)

    My ESR was almost 0 at onset (maybe it was zero/undetectable), but has been more or less normal since then. The low ESR was how I (not the...
    Post by: Jaybee00, Nov 27, 2018 in forum: ME/CFS research
  2. Jaybee00
    Post

    Erythrocyte Deformability As a Potential Biomarker for Chronic Fatigue Syndrome, Davis et al (2018)

    It would be nice to know if Fluge and Mella measured something like this in the CYCLOME study...to see if cyclophosphamide made the blood nice in...
    Post by: Jaybee00, Nov 27, 2018 in forum: ME/CFS research
  3. Jaybee00
    Thread

    New sleeping sickness drug approved

    https://www.nytimes.com/2018/11/16/health/sleeping-sickness-africa-cure.html They managed to secure $63 million in funding for this...a horrific...
    Thread by: Jaybee00, Nov 19, 2018, 3 replies, in forum: Other health news and research
  4. Jaybee00
    Thread

    A20 critically controls microglia activation and inhibits inflammasome-dependent neuroinflammation

    https://www.nature.com/articles/s41467-018-04376-5 Wonder if PWCFS/ME have a Nlrp3 inflammasome signature and IL-1β expression in brain and...
    Thread by: Jaybee00, Nov 10, 2018, 0 replies, in forum: ME/CFS research
  5. Jaybee00
    Post

    NSAIDS

    This thread https://www.s4me.info/threads/etoricoxib-arcoxia-any-experiences.5377/
    Post by: Jaybee00, Nov 4, 2018 in forum: Drug and supplement treatments
  6. Jaybee00
    Post

    Ampligen for ME/CFS

    What's the update on Ampligen? Are people getting Ampligen in Nevada and North Carolina? How does one get Ampligen in Nevada or North Carolina?...
    Post by: Jaybee00, Oct 18, 2018 in forum: ME/CFS research news
  7. Jaybee00
    Post

    Applicants needed for Columbia ME/CFS Research Center Community Advisory Committee

    Thanks for update.....
    Post by: Jaybee00, Oct 10, 2018 in forum: General ME/CFS news
  8. Jaybee00
    Post

    CFS Research Center at Stanford Second Annual Community Symposium Sept. 29-2018

    Hi, I missed the symposium--I guessed that there was nothing definitive on Cyclophosphamide from Fluge? I see from Cort Johnson's tweets that he...
    Post by: Jaybee00, Oct 1, 2018 in forum: ME/CFS research news
  9. Jaybee00
    Post

    He Got Schizophrenia. He Got Cancer. And Then He Got Cured.

    From the above article....... “In the late 19th century, physicians noticed that when infections tore through psychiatric wards, the resulting...
    Post by: Jaybee00, Sep 30, 2018 in forum: Other health news and research
  10. Jaybee00
    Thread

    He Got Schizophrenia. He Got Cancer. And Then He Got Cured.

    https://www.nytimes.com/2018/09/29/opinion/sunday/schizophrenia-psychiatric-disorders-immune-system.html?rref=collection%2Fsectioncollection%2Fopin...
    Thread by: Jaybee00, Sep 30, 2018, 14 replies, in forum: Other health news and research
  11. Jaybee00
    Post

    Mycoplasma infections in people with ME/CFS

    @James Morris-Lent Would you mind sharing which antibiotic helped you? Thanks
    Post by: Jaybee00, Sep 23, 2018 in forum: Infections: Lyme, Candida, EBV ...
  12. Jaybee00
    Thread

    Lofepramine/phenylalanine for fatigue

    Hello, There was some research into looking at a combination of lofepramine and phenylalanine to treat fatigue in MS. It looks like it had a...
    Thread by: Jaybee00, Sep 23, 2018, 1 replies, in forum: Drug and supplement treatments
  13. Jaybee00
    Thread

    Mycoplasma infections in people with ME/CFS

    Hi, In the late 1990's early 2000's there were several studies looking at mycoplasma infections in CFS, and researchers generally found much...
    Thread by: Jaybee00, Sep 23, 2018, 12 replies, in forum: Infections: Lyme, Candida, EBV ...
  14. Jaybee00
    Post

    Cyclophosphamide drug questions?

    Thanks—I had kept hearing early 2018.
    Post by: Jaybee00, Sep 7, 2018 in forum: ME/CFS research news
  15. Jaybee00
    Post

    Cyclophosphamide drug questions?

    Hello, Anybody have any info on the status of the publication of the Norwegian cyclo study? It’s no longer early 2018. Maybe article needed...
    Post by: Jaybee00, Sep 7, 2018 in forum: ME/CFS research news
  16. Jaybee00
    Post

    The effect of physiotherapy on fatigue and physical functioning in chronic fatigue syndrome patients: A systematic review, 2018, Servadio et al

    @Keela Too ...yup, doesn’t make sense...
    Post by: Jaybee00, Sep 1, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  17. Jaybee00
    Post

    Randomised placebo-controlled trial of dietary glutamine supplements for postinfectious irritable bowel syndrome, 2018, Verne et al

    Was it any particular type of glutamine? Thanks (Don’t have access to article)
    Post by: Jaybee00, Aug 27, 2018 in forum: 'Conditions related to ME/CFS' news and research
  18. Jaybee00
    Post

    Hyperintense sensorimotor T1 spin echo MRI is associated with brainstem abnormality in CFS, 2018, Barnden et al

    Like tinnitus and narcolepsy....two dieseases with no cure.....ugh......
    Post by: Jaybee00, Aug 18, 2018 in forum: ME/CFS research
  19. Jaybee00
    Post

    Etoricoxib (Arcoxia) - Any experiences?

    https://blog.iodine.com/3-surprising-medicines-that-might-help-your-depression-d31f7f7869c6 See here also, but E>>C
    Post by: Jaybee00, Aug 15, 2018 in forum: Drug and supplement treatments
  20. Jaybee00
    Post

    Etoricoxib (Arcoxia) - Any experiences?

    Good, good, good. Has a potent mood-boosting effect also (at least for me). Here is study for Celebrex...but I find Etorioxib to be...
    Post by: Jaybee00, Aug 15, 2018 in forum: Drug and supplement treatments
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