In kids, first symptoms seem.to be gastro linked. There are increasing numbers of tweets re kids. [MEDIA]
Emphasises why we need accurate assessment criteria and follow up. As it persists for most and people live longer it is important that...
The king is dead, long live the king. It was niaive to think it would be otherwise.
I wonder how David Tuller' a seminar/ talk to Paul Garner and colleagues (?) Re PACE went? Is there potentially a means of a counter narrative...
That assumes that they are looked at. Very little is looked at.
The low dose daily option was suggested for nominally low morning cortisol levels by endo. He didn't respond to dosage queries when it all went...
Thanks @InitialConditions . That was one of the reasons why I started the thread
There is a subset for whom corticosteroids are a disaster
I have started this thread as a lot of advocacy campaigns , and some research utilise online questionnaires to gather info. The James Lind...
Eyes are a big issue for my daughter but in different ways Feel dry but eye drops fall out Feel too big for sockets Muscles so tight it feels...
Interesting. One teenager we know was treated with antivirals for HHV 6 and is now mildly affected. Could be coincidence of course .....
My daughter has had skin issues off and on since she was small. There is an allergy aspect ( dropping dairy helped) , and there are some...
Were there specific areas of consequential damage with SARS, or were they just completely thrown under the bus?
Look what you can find if you look for things... OI was not a " thing" in paediatric ME/ CFS until Peter Rowe named and shamed at CMRC...
Is the Polish group affiliated to Karl Morten not doing some form of cold water therapy ?
https://www.theguardian.com/world/2021/jan/05/no-data-to-support-uk-delay-of-vaccines-second-dose-says-who WHO not impressed by second dose delay...
Muscle wasting here and not completely bed bound. Also muscles very tight/ tend to spasm. My daughter seems to be in a catabolic state. It may...
It should, but given provision seems to be patchy at best it is not yet the game changer it could be. ETA spelling
Does she know Mr Parker I wonder ?
There may be a long term view here. NICE guidelines touched on paediatrics but there needs to be updated specific guidance. This could be a...
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