There has been correspondence on the MEA fb page today requesting the MEA to write to the Times about the inaccuracies about patients in Fiona...
If I get to the stage of researching this, I’ll come back to you @Alvin
Thank you for feeding back this information. It helps put a context to the situation we are facing in gaining MP support which we need if we get a...
I have received replies from both Ed Davey and Nicky Morgan, MPs. Since we hope to have a debate in the full house, and will need as much MP...
https://www.meassociation.org.uk/2018/08/the-times-call-for-review-of-flawed-me-research-in-lancet-letter-21-august-2018/ I have written a note...
Just to add that my MP is one of the 10 signatories. I have sent him an email with a link to the Times article. Anyone else with a connection to...
Thank you @MEMarge, and for your tips @Milo .
@AndyPandy Thanks for the detail in your reply. Will locate the site tomorrow. I have concluded after the last few weeks' experience that plane...
I think Vince Cable signed one of the petitions, maybe an edm. Maybe he might be interested? In fact maybe all the edm signatories should be...
Is there a problem with this link? Have tried to repost twice on local group.
I posted in the last thread @Mattie travelling by car. Now I need to ask about air travel and carrying wheelchairs. About 4 weeks ago, I did the...
Me too.
I was encouraged by the OMF report on Wed on blood issues with a manuscript submitted for publication, and the potential as a biomarker....
https://www.omf.ngo/2018/08/15/mohsen-nemat-gorgani/ Current research in the rheological properties of red blood cells at the Open Medicine...
@ukxmrv Thank you for the comment and the link. Very interesting. As far as I know the work on blood done in the 1990s by dr Leslie Simpson...
Thank you @Jonathan Edwards. I shall have a think about whether to ask for a referral to a rheumatologist after doing some more reading. I can't...
I'm sorry @Inara, I don't know. I have been following with some curiosity any comments about " sticky blood" and was interested to see Cort's...
https://www.healthrising.org/blog/2018/08/15/sticky-blood-antiphospholipid-syndrome-pots-chronic-fatigue-syndrome-and-fibromyalgia/ I posted...
When I was in NYC in June, I read an article in a journal about something called something like " delayed sleep phase disorder" : it may not have...
I was diagnosed with dry eyes in about 1977 at Surbiton eye hospital. I don't know the name of the test that was used but it seemed as though they...
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