This is not very coherent. Am still not expressing myself clearly after anaesthesia but I wanted to comment below. Have scanned David's article...
From a reading of the letter, I think there were considerable time constraints in play e.g. he began by saying he hoped it reached them in time to...
Heartbreaking with not an ounce of self pity. I know I used the same word as you @Trish. It just fits best.
http://occupyme.net/2017/11/25/for-serious/#comments I came across Nancy Blake again when she responded to Jenny Spotila's blog last week. She's...
@arewenearlythereyet I don't think so. Part of his argument was something to the effect that after red blood cells had been ' fixed' for a while,...
Am writing from memory but I did once have a copy of a book written by Nancy Blake and Dr Leslie Simpson. It was the same Nancy Blake. I remember...
@Forestvon Well done! I think the ME community is going to have to act individually as well as as a group and it will enhance our effect. It's...
@large donner It might also be worth pointing out that Bristol uni staff i.e. Crawley ( I am presuming that teaching is one of her...
Do we have any Bristol alumni here? I read last week that Russell group universities including Bristol are investigating the wealth of their...
Hi - thanks for starting this thread @Sallycatherineharris I find it hard to describe how the news affected me. It was surprising and actually...
http://cureme.lshtm.ac.uk/the-uk-mecfs-biobank/ Research nurse ( names has disappeared-ugh) recommended following progress on website. There is...
Confirmation received this morning from the research nurse that I am not suitable to provide samples for biobank. It was as I expected. I had...
Had a very prompt reply from the research nurse at the biobank requesting information giving criteria I can't comply with. 1) need to be younger...
I think Invest in ME is currently doing a doubling of donations for a short time. @Jo Best
Thanks Andy. Have contacted them.
@Andy Is there an email address for the biobank?
Have answered primary progressive but have been diagnosed with a heart issue needing surgery so this may be making a significant contribution....
@Graham I meant on the forum because I don't live in Sussex. We came quite a way to see the film. For some reason I wanted to be part of a group...
@Graham @MEMarge It was good to meet you this afternoon in Crowborough. I recognised Graham immediately, and MeMarge almost as quickly. I was...
Thank you @ChrisH It's been helpful to hear from someone who has gone through the experience. Good wishes.
Separate names with a comma.