Thank you @NelliePledge. I lost power .....rather dramatically....when a local substation blew up just after I sent my post. No WiFi, lights,...
https://www.meassociation.org.uk/2007/11/house-of-commons-adjournment-debate/ Have just found this when looking for the announcement from last...
Carol Monaghan was sitting towards the right end of the front row in the House of Commons this afternoon, Nicky Morgan on back row well behind PM....
Just seen on facebook [ATTACH] ETA: off to bed. Busy day tomorrow.
Not feeling very hopeful @Sunshine3 especially since I am having a really bad day ( much worse than usual) and have to go for heart tests at the...
I have read somewhere something to the effect “template question.......template reply.” But yes, it takes much energy to do an individual letter...
Copied across from other thread. ETA: Nice: co-signees Burton letter We sent an individual letter by post on 1st November. No reply received so...
Do we have confirmation that this interpretation of voting rights is correct?
I am sorry to see Alem’s family having to deal with this as well as seeing him so very ill as a result of his efforts on behalf of people with ME....
Did not someone say that one was a 19 year old patient? Cannot remember where I read this.
I’m whistling in the dark a bit here, but is there not a process that can be applied for if a decision making committee ignores the evidence...
Great work @Graham. Am pleased to see they are being tweeted. ETA: I ended that with a smiley face which disappeared. Just imagine a grin.
https://www.nice.org.uk/guidance/indevelopment/gid-ng10091 Trying to look for an announcement from Nice re above. As far as I can see, the last...
Statement from INVEST in ME Addendum II - 03 November 2018 The latest news from NICE is that they have now decided to open two new positions in...
MEAssociation has posted @Brian Hughes’s blog. I think I read that they weren’t planning to be on the website this weekend for energy reasons so...
After a pretty rough 2 weeks, with the Cochrane issue, the Nice guideline development group formation, the Guardian podcast, it has been wonderful...
He discusses the Guardian podcast. It’s bang up to date.
I am hugely grateful for your interest and commitment to the ME community but I am struggling to accept the “behind the scenes” agenda. I truly...
I think we need to be writing individually to Nice and our MPs. My DH stepped up and has just posted our letter to Sir Andrew. Then we need to...
Stay strong @ladycatlover. My walking limit is about the same as yours and same age as you, and it’s a nightmare. I was distraught yesterday after...
Separate names with a comma.
