I understand your concern, but I’m not sure I want ME/CFS-researchers that takes it personally when they are proven wrong. That’s partially why...
What isn’t understood? ;) Why does ME/CFS exclude LC as a co-morbidity? I’ve always thought of LC and ME/CFS as two partially overlapping...
The phrase "if you can't explain it simply you don't understand it well enough" comes to mind. I don’t know if that’s the case here, but it could...
No, it does not. That’s why I didn’t label is as PEM-safe, and stated that it is used in an effort to reduce the energy cost of any given activity.
Throughout the history of humans, most people have been wrong about most things. And most people don’t understand the almost insurmountable...
It’s difficult to change your mind without strong incentives (like PEM). And some just want to be of help, so they end up focusing too much on...
I was not aware of that context, thank you for letting me know. Seems like I jumped to conclusions, although prior work isn’t a guarantee against...
It’s probably impossible. And that’s a good argument against contacting researchers. If they want to hear from us, they know where to find us.
«We need to use all of the available tools and work together to solve this». Why is this relevant for ME/CFS? Logical fallacy? «We haven’t...
I’m new here and I love this place. Why do people hate it and stay away? I might be naive and idealistic, but I (used to) work in a firm with a...
Is it fair to say that this is a good rule of thumb?: You can’t force an improvement, you have to wait for it while avoiding deterioration....
I like his theory because it focuses on something they found to be wrong, and then they try to work around it. It might not be what’s wrong with...
This tracks with my understanding of PEM after 3 years of LC and now ME. The rule is simple: don’t cause PEM, wait for a stable improvement...
Some suggestions: ME/CFS Disassembled (MCD) ME/CFS Understood (MCU) ME/CFS Comprehension (MCC) Although «SKEPTICISM implies unwillingness to...
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