And what about PEM from taking a bath? It doesn’t require more movement, but the stimuli seems to really mess with every single system.
Maybe the different responses to different types of exertion is something we should try to highlight in a future fact sheet? Idk if there are any...
I would be willing to bet that ME/CFS patients need more care from close family than most MS and Parkinson patients. Due to: less help and lower...
Don’t quote me on this, but I believe that there’s only one national fee. I don’t know if it’s distributed based on membership numbers in the...
@Yann04 you could also argue that if the patients are getting better (i.e. less symptoms), then why change the approach? Why not let them continue...
Auto-translated from German. I added some line breaks. What makes “Miracle” special "Miracle" looks where others don't look - for example at the...
I imagine Landmark, Wyller, etc. believe that they have discovered how something works. Chasing «I know something» is a slippery slope that...
I’m amazed at how many studies you find, remember and understand, @forestglip I don’t have the head to search for things now, but I wonder if eg...
I fully agree. But they don’t know that, or they refuse to acknowledge it. In principle, yes. But the HIV patients had to riot to get anyone to...
I’ve started just calling it Psycho. That being said, I still believe that we shouldn’t discriminate based on the subject, we should discriminate...
Why? They already have effective treatments (in their opinion). Most politicians don’t care about actually making a difference, they care about...
I don’t think it should be limited to biomed, that would create undue bias. It should, however, be limited to studies of the highest research...
Anyone, anywhere, anytime. I’m tired of the rehab-fetish. The Norwegian study showed that it doesn’t work for ME/CFS, and so many with LC...
The Government isn’t going to just hand out money to researchers. They are going to do one of two things: Create a bureaucracy to hand out the...
IIRC, most of the money was spent on population studies and not on actually researching the virus or the patients. The people in charge did not...
Yes and yes. I don’t know how much help exactly, though. About 300 NOK py. £21 / €25 / $27 at the current rates. If you’ve got the lowest...
I would love to see the evidence that shows that this is a safe and effective approach for pwPEM. How to make pwPEM crash hard 101. Why can’t...
I believe that @Jonathan Edwards recently said something along the lines of: The quantity in the blood is irrelevant because immune cells in the...
Let’s assume that misfolded proteins are at the heart of this. These are more or less random thoughts: What causes and or drives the misfolding?...
I skimmed some posts. It seems like he goes beyond the evidence regarding e.g. meds and the immune system. He also encourages strict rest for...
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