But making sure that 'involvement' or 'engagement with' those who have ME isn't 'tokenistic' and is diverse, representative etc seems a pretty...
And then maybe 4. What is there that is specific to ME, and different levels of ME and different contexts - that need to be added to an...
My questions: 1. I don't know whether there are other organisations who have done similar things out there. But think that this page should...
I've put this in advocacy, but it just as easily would work as a topic - with quite different discussion - in 'research'. I also suspect there are...
The irony isn't lost on me that a pretty heavyweight seeming head of governance has stated in their letter that they are too small a charity to be...
Can we guess at approx what date the silence/potentially confidentiality agreements came in? Based on when comments were being made and then...
Is this Katharine CHeston who is/was on the IAG for the Cochrane review ('recovered person') ?
Oh and the important bit being that the 'straw man' of the 'even worse quality' was from the very same people - so as long as they can produce...
Am I confused or is Hilda in her statement? When she says that CDC and Nice used 'low' as a quality rating for some of the evidence (much of...
I've recently seen quite a few social media short videos on masking for ADHD or ASD and am beginning to think more and more that this would be a...
NOt that the rest isn't great - this is just the bit I've zero-d in on right now. But I think at 26mins in, he's done well at answering the...
Indeed, but when you read the following: "Plain English summary: Key messages People who have exercise therapy probably have less fatigue at the...
Depend what other databases they have access to, which is the issue I’d assume there is a norm of not being allowed to report at all where it is...
I've just read this and think it is useful potentially for this, although might also paste it elsewhere because rarely do I see an article that...
NOne of which, as far as I can see, stops them from withdrawing the old review. I think they are trying to 'reframe' and distract by shifting...
And that people like union reps or bosses or friends or family when someone is needing functional help to e.g. deal with the situation regarding...
They’ve missed out the part / mediator where the worry starts when the realise that not only is there not a fix but that they are being dumped off...
Is this the same gentleman? Jonathan A. Michaels (jmichaels.me)
And hiding dodgy non-health positive paradigms, ‘treatment’ or as they now call is [re-]education, and using rumour and misinformation as...
and doesn’t square with the rate of people dumped into CFS bucket who were misdiagnosed and eventually are confirmed as having on those conditions...
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