In response to a thread elsewhere talking about Jen's condition pathway and the attendant implications for both patients/families and NHS...
In 1997? Eithne Leming ( a local LEA Officer) came across lots of children with ME and other chronic long term health needs so she set up a...
Trading Standards ...........??? LP, or RT http://www.reverse-therapy.com/ http://www.reverse-therapy.com/ or MT Mickel Therapy............
They said from the outset that it was needed for people providing input into education, but would RCP/NICE would not consider securing a...
Investment in our 'US goose' that hopefully will lay a golden egg of truth! Despite Reuters KK and MS trying to 'kill the goose with their...
Many thanks. I have struggled to get a workable link!
Healthwatch Lancashire have published and update on the Trafford ME National Survey ( 2015 and 'ongoing') which was issued during 2017. This...
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Surely we should look to what personalised, palliative care approaches bring to this situation? That in effect is what is required for the...
Missing Millions Norwich![ATTACH]
[ATTACH] "Mostly without treatments, if we could just get a handle on not making us worse, that would be a big step. One big one for me was home...
This is what we had in East Anglia until 2006/2007 and this is what was lost...... This is why we are continuing the fight for re reinstatement of...
But I am worried about it or I wouldn't be posting about it! Just revisited the Scoping brief in case my mind was playing tricks on me! 2 issues....
Adam, this is vital to counter FII. Can't stress this enough. Savey ME knowledgeable LEA officers and specialist teachers are often the only...
Key issue is Education AND Health Care Plans.. currently in the news. Also PRU staff were/ are specialist 'trained' to deliver health specific...
Not quite. Social Workers are LA and NICE had to cover them to be compliant with 2014 Health & Social Care Act. It's my understanding from reading...
Thank you Jo. In my post, I spoke as an affected parent but separately, I can also speak as an educational professional as well, working with...
"We started to play the game - go along, agree goals then ignore them. We also needed "experts" to provide letters for schools, exam boards etc....
There might be a couple of slide/ ideas contained in a power point which was to raise awareness with Social Workers?
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