So here we have the RCPCH being referenced. Presumably Crawley writes any paediatric 'CFS' guidelines for that Royal College.
Yes, that was my immediate thought - by this criteria they shouldn't have any members, hence not exist at all. However, it is feeling more and...
Is any other patient group a member of BACME?
This has made me realise how much international collaboration we now have in the ME community, both at patient and at research level. We are so...
A ME/CFS research organisation that decided to call their journal 'Fatigue' sets off warning bells in my head.
I expect the long term Long Covid sufferers will be seeing the similarities more and more. Once people have had Long Covid for over a year (so...
A comment from an Australian signee @rvallee
I'm waiting until tomorrow to sign as I'm not up to composing a suitable comment to add today, but I want to do this. The quality of comments on...
The Green Paper states that when they brought in the WCA they predicted that only 300,000 working age claimants would meet the LCWRA criteria for...
It's worrying because the recent Green Paper is saying that some of the criteria are now irrelevant due to advances in assistive technology,...
If you are severe enough that you can't reliably mobilise with the aid of a manual wheelchair 50 metres then this would put you in the Limited...
I think these petitions are aimed at individuals, but certainly accept and welcome international participation where this affects them too. So...
In the UK, they say benefits are based on 'functional assessments' but then if you don't have a formal medical diagnosis they will assume you are...
I think after what the Royal Colleges have done any compromises that have been made in the final draft from a patient perspective could be...
The new one is more neutrally worded and I am presuming that MEAction was a stakeholder in the guidelines so will have seen the final version. I...
Yes, with even reduced symptoms I would be able to demonstrate a marked improvement in my ability to carry out named activities of daily living...
Maybe they want to tap the emotional angle? The accounts might be more aimed at parliamentary ministers or the media, the request doesn't say....
I was browsing the comments on the online petition (now well over 1500) and some of the comments are actually testimonials, so I would suggest...
Are any of the other 'patient charities' member organisations of BACME?
Yes, I understand. But I like to go to the original source first, so I can look at it as neutrally as possible to start with. I am aware that PWME...
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