I also have a "likely pathogenic" variant expected to cause a nonfunctional protein in a gene involved in fatty acid oxidation, for which no...
I have access to my own raw data and am looking through it slowly. One of the interesting findings so far is a series of mutations in the...
It was similar for me. I didn't have as much contact with the healthcare system early on due to a slow and insidious illness onset but still...
Sounds great. The patients are expected to need treatment every 10 years or so (nobody knows for sure). So quite not a cure, more like a really...
I can see the validity of both arguments here. There are some ugly and rarely opened expressed prejudices ingrained in the medical and research...
Maybe it's more that they must invent new reasons for their own professional existence? As far as I'm concerned the ancient Greeks had human...
I have this now. My brain feels chronically undersupplied with blood, and spending time upright makes it worse. While lying down it's not a strong...
Worse than I imagined.
I have a feeling that this LP study could go badly due to recruitment process. If I understood right the patients will be referred by the...
I clearly remember that Ron Davis some years ago said they were seeing high levels of lipids in cells in one of the experiments they did. Maybe in...
Is the peroxysomal dysfunction sufficient to cause accumulation of certain fatty acids? If yes, that would make reduction of fat intake or some...
Maybe the right time is to measure every day for a week while the patient is doing a little too much. Not enough to cause a serious crash but...
A study by Morten and his Polish collaborators found a decrease in central energy metabolism in patients with ME/CFS when comparing pre and post...
Is this saying that oxygen-dependent energy production decreased?
I've been going swimming almost every day lately and there is a trend of finding it increasingly difficult over time. I keep having to reduce the...
I believe that something like LP has a high risk of long term harm because it attempts to persuade patients to believe in something that is not...
As far as I know, there's still no evidence somatization is actually a thing. They can't even define it clearly enough to allow falsification of...
@DMissa are you interested in hearing some ideas on how to investigate PEM and ME/CFS?
They defined it as tendency to avoid unwanted experiences.
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