As the title suggests I’m looking for resources on why the Name “CFS” is problematic and “ME” or “ME/CFS” is recommended. Specifically I’m in...
Swiss govt long covid advisory group not showing up with no explanation to meetings with swiss long covid organisations. [MEDIA]
So refreshing too see they have authors from many patient organisations.
I don’t know unfortunately. Looking at the author list it seems majoritarily Austrian with a couple of Swiss and Germans in too. In the case of...
Really impressed by this piece. Given it’s published in a Viennese journal, I’m suspicious WE&ME have something to do with it. Hope this will...
Some translated quotes: In the distinction from other diseases, the leading symptom of ME/CFS, post-exertional malaise (PEM), is of decisive...
Glad to hear it is going so well!
Axios Article:...
Couldn’t find any on s4me although it does seem like a very basic question so you are probably right. I thought it would be interesting to see...
Post-covid, I think the general estimate if you very roughly put together a lot of studies and surveys is around 1 in 100 people. I think pre...
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